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An update and a short vent. by GroettumMama Posted in: Blog Posts in Cystic Fibrosis Several times a week I try to remind myself to sit down and blog. It’s so frustrating to realize how many months have gone without updating (for myself more than anything ... Read on »
Not So Easy by GroettumMama Posted in: Blog Posts in Cystic Fibrosis Yesterday, Gavin had another visit to Amplatz for his Kalydeco drug study. I don’t know if we have been living in a blissful state of ignorance, but when your child ha ... Read on »
The beginning of a new chapter by GroettumMama Posted in: Blog Posts in Cystic Fibrosis On September 17th, 2013, Gavin got his first dose of Kalydeco. To be honest, I thought I would have this grandiose emotional moment. But like most things, the moment p ... Read on »
It’s happening! by GroettumMama Posted in: Blog Posts in Cystic Fibrosis Kalydeco. It’s happening for Gavin. When Gavin was first diagnosed shortly after birth through the newborn screening test, we heard about Kalydeco (then known as VX-77 ... Read on »
Those Moments by GroettumMama Posted in: Blog Posts in Cystic Fibrosis Before becoming  a parent, you see images/clips/tv shows/movies etc. of parents gushing over those “proud parenting moments.” Before kids, we can all live to imagine what ... Read on »
Catching Up by GroettumMama Posted in: Blog Posts in Cystic Fibrosis Finally. Spring. After a snowstorm at the beginning of May left us with 15.5 inches of snow – we’re finally past one of the worst winters I can remember. Mother na ... Read on »
And it continues… by GroettumMama Posted in: Blog Posts in Cystic Fibrosis We’re over it. Winter, that is. Nearly every morning, Gavin asks me if summer will be here by bedtime. Once again, on the 18th of March, we’re in the middle of a ... Read on »
Enjoying the snow by GroettumMama Posted in: Blog Posts in Cystic Fibrosis   What a bizarre winter this has been! From rain, to sleet to snow – and don’t forget the ice! It took until March to get a combination of enough snow on the ground an ... Read on »
Valentine’s Day by GroettumMama Posted in: Blog Posts in Cystic Fibrosis We had a quiet, but fun Valentine’s day this year. Gavin is at an age where every holiday – whether big or small – seems magical & exciting. Probably because he is hoping ... Read on »
He turned FOUR! by GroettumMama Posted in: Blog Posts in Cystic Fibrosis Not quite sure how time flew so quickly, but my little buddy turned four! He had quite the few days of celebration. Since Christmas he has been begging us for a Kindle of ... Read on »
Christmastime Is Here! by GroettumMama Posted in: Blog Posts in Cystic Fibrosis We are right in the midst of the holiday season! We had a great time in Iowa for Thanksgiving, celebrating with my mom’s side of the family. Lots of aunts, uncles and cous ... Read on »
Pumpkins & Halloween Fun! by GroettumMama Posted in: Blog Posts in Cystic Fibrosis We visited Sekapp’s Apple Orchard/Pumpkin Patch… Gavin painted a pumpkin… We carved pumpkins… We played Hallowe ... Read on »
Gymnastics by GroettumMama Posted in: Blog Posts in Cystic Fibrosis Just a quick note this evening – more for my own family records than anything else. Tonight, Gavin started gymnastics. Due to gym rules I couldn’t get any pictures (yes, I ... Read on »
Preschool! by GroettumMama Posted in: Blog Posts in Cystic Fibrosis Where has time  gone? How have 3 1/2 years possibly flown by so quickly? And let’s be honest – when Gavin was first born, and diagnosed with CF, I had this image of si ... Read on »
A Mini Getaway by GroettumMama Posted in: Blog Posts in Cystic Fibrosis This past weekend we jetted up to the Twin Cities to start off our extended Labor Day weekend with a bang. We joined Casey’s parents at the Waterpark of America/Radis ... Read on »
Quick Update & Photo Dump by GroettumMama Posted in: Blog Posts in Cystic Fibrosis Today is our last “real” day before the school season begins. Tomorrow we’re taking  a long five day weekend to just relax and play! I cannot believe that my little b ... Read on »
National Night Out 2012 by GroettumMama Posted in: Blog Posts in Cystic Fibrosis Last night we hosted the annual National Night Out block party for the second year in a row. Once again we were blessed with some fantastic weather! Considering the ... Read on »
Heise Reunion 2012 by GroettumMama Posted in: Blog Posts in Cystic Fibrosis Why hello there blog – it’s been awhile. We’ve been having so much fun this summer, that I keep running out of time to post! Last Thursday, Gavin had an amazing CF ch ... Read on »
A Trip to the Dells by GroettumMama Posted in: Blog Posts in Cystic Fibrosis A trip the Dells was in order this spring, as we headed to the Great Wolf Lodge. Because we went off season, we lucked out with some great prices – and a relatively quiet ... Read on »
Just Sayin’ a Thank You by GroettumMama Posted in: Blog Posts in Cystic Fibrosis Being the mom of a child with extra needs has it’s challenges. Duh. Well, you’d think that it would be “duh…” But today, I would like to say thank you to that handful ... Read on »