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An update and a short vent.

Several times a week I try to remind myself to sit down and blog. It’s so frustrating to realize how many months have gone without updating (for...

Not So Easy

Yesterday, Gavin had another visit to Amplatz for his Kalydeco drug study. I don’t know if we have been living in a blissful state of...

The beginning of a new chapter

On September 17th, 2013, Gavin got his first dose of Kalydeco. To be honest, I thought I would have this grandiose emotional moment. But...

It’s happening!

Kalydeco. It’s happening for Gavin. When Gavin was first diagnosed shortly after birth through the newborn screening test, we heard about...

Those Moments

Before becoming  a parent, you see images/clips/tv shows/movies etc. of parents gushing over those “proud parenting moments.” Before kids, we...

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GroettumMama posted Awareness Jan 11 2010
GroettumMama posted Not Me Monday! Jan 11 2010
GroettumMama posted What to do... Jan 08 2010
GroettumMama posted Giveaway Jan 07 2010
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