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Gina H.

Dell Rapids, South Dakota
I am a mother of three; my oldest has Rett Syndrome, a severe progressive neurological disorder. Rett Syndrome is caused by a spontaneous mutation of the MecP2 gene and affects roughly 1:10,000 girls. We are learning so much about caring for a child with complex medical and educational needs, and... Full Bio
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Right to Birth by Gina H. Posted in: Blog Posts in Physical & Mental Disabilities The new effort to repeal the health care reforms that were so hard won has got me steamed-- and active again. Thanks to President Obama, Democrats and a few brave republican ... Read on »
Rett Syndrome gets a boost from MSNBC! by Gina H. Posted in: Blog Posts in Physical & Mental Disabilities The International Rett Syndrome Foundation (IRSF) is the recipient of an extremely gracious, generous and incredible donation…advertisement design and space for an entire ... Read on »
South Dakota's new IRSF Rep by Gina H. Posted in: Blog Posts in Physical & Mental Disabilities I am excited to be the new regional representative to South Dakota for the International Rett Syndrome Foundation (IRSF). If you or anyone you know has a daughter with a glo ... Read on »
Kaiser Continues Denial Processes by Gina H. Posted in: Blog Posts in Physical & Mental Disabilities If there is one thing I have learned in being a mom of a child with disabilities, it is that the more persistent I am the more likely I am to get results. One public employe ... Read on »
Kaiser DME denial discriminates against disabilities by Gina H. Posted in: Blog Posts in Physical & Mental Disabilities Kaiser recently denied a speech generating device for our daughter. After some research, I wrote this letter and thought to post it here in case it is useful for others Mem ... Read on »
California is not the heartland by Gina H. Posted in: Blog Posts in Physical & Mental Disabilities We have had such amazing experiences since moving out of California. The term "heartland" for the midwest always struck me as a cliche (being from liberal, progressive Calif ... Read on »
Socialism, Fascism and Health Care by Gina H. Posted in: Blog Posts in Physical & Mental Disabilities I have a child who is uninsurable. As with so many millions of Americans, she has a "pre-existing condition." Simply translated: "known to actually use medical services an ... Read on »
IEP Questions to Ask by Gina H. Posted in: Blog Posts in Physical & Mental Disabilities Here is the first of many comparisons between California and South Dakota. Had a meeting with my daughter's future IEP team last week. We were a bit concerned about the move ... Read on »
Hippotherapy by Gina H. Posted in: Blog Posts in Physical & Mental Disabilities One of the great things about our move is that my daughter will be able to ride-- we will probably get her a horse. We are finding out about Hippotherapy . Her aunt was a vo ... Read on »
A good day to move by Gina H. Posted in: Blog Posts in Physical & Mental Disabilities Today was a good day. Unlike her two younger sisters, Emma has been a bit conflicted about our move. Really making sure I understand where my autistic, aphasiac non-verbal c ... Read on »
Why South Dakota??? by Gina H. Posted in: Blog Posts in Physical & Mental Disabilities So many people have been asking, I thought I would write about our decision to go. For me, this is about acceptance. Caring for a child with needs as complex and inte ... Read on »
Home Again and Packing! by Gina H. Posted in: Blog Posts in Physical & Mental Disabilities I had to take a bit of a hiatus from blogging-- things have been in a whirlwind!! Back again and getting ready to move. First things first, I promised a retrospective on our ... Read on »
Traveling: Wheelchairs, service dog, meds and all by Gina H. Posted in: Blog Posts in Physical & Mental Disabilities We are leaving today on a 10-day, four airplane, cross country trip-- two parents, three kids, a service dog and many items which will arouse the curiosity of the TSA, inclu ... Read on »
Regional Centers Denying services by Gina H. Posted in: Blog Posts in Physical & Mental Disabilities Seems like everything I say, write and think about lately starts with "in the current economic climate..." but the truth is little has changed for my kid at school or in t ... Read on »
A Modest Solution by Gina H. Posted in: Blog Posts in Physical & Mental Disabilities Our board members will be forced into the untenable, miserable position of having to make additional cuts to the MDUSD budget. I do not envy their position, nor the pres ... Read on »
Lest we forget by Gina H. Posted in: Blog Posts in Physical & Mental Disabilities Recently in my home school district members of the board have been rallying to "study special education" to make sure it is "cost effective." Members of the community, ala ... Read on »
"The generosity of the voters" by Gina H. Posted in: Blog Posts in Physical & Mental Disabilities Yesterday I went to Sacramento to speak to the legislative budget committee on what the committee chair sarcastically called "the governor's revised revision of the May revi ... Read on »
Refusing Medical Treatment by Gina H. Posted in: Blog Posts in Physical & Mental Disabilities There was a great show on Talk of the Nation today on the right to refuse medical treatment based on the family that fled under a court order to provide chemo for their ch ... Read on »
Access, It's an attitude! by Gina H. Posted in: Blog Posts in Physical & Mental Disabilities We took the family out to see Night at the Museum 2 at our favorite local theatre. Why is it our favorite? Accessibility of course. It has wheelchair seating in the first ro ... Read on »
Test Scores on Transcripts by Gina H. Posted in: Blog Posts in Physical & Mental Disabilities Principals in my home district are lobbying the school board to adopt a new policy to place California Standardized Test Scores on students transcripts. The board discusse ... Read on »