First and foremost, everyone is jumping for joy since the Genetics Information and NonDiscrimination Act passed unanimously today. But, I will not rest until President Bush takes that lovely little pen and signs this into law. I hate to be called a cynic. I am a realist....But President Bush Will sign this into law. Until that, it is just a passed bill. But it is a start.
Second, the American College of Medical Geneticists has put out a statement regarding genetic tetsing and patient care.Hsien, points this outover at Eye on DNA. She does a great job of highlighting the issues. Which, once again brings me to the point that diagnosing pre -disease is just as much medicine as diagnosing full on disease.
minimum requirements for any genetic testing protocol.” 1. A knowledgeablehealth professionalshould be involved in the process of ordering and interpreting a genetic test. 2. The consumer should befully informedregarding what the test can and cannot say about his or her health. 3. The scientific evidence on which a test is based should beclearly stated. 4. The clinical testing laboratory must be accredited byCLIA, the Stateand/or other applicable accrediting agencies. 5.Privacy concernsmust be addressed.
The Sherpa Says: Well. You have got to ask yourself. If the professionals are stating these are MINIMUM requirements.....what is everyone else doing? And why aren't they all doing the minimum?
Second, the American College of Medical Geneticists has put out a statement regarding genetic tetsing and patient care.Hsien, points this outover at Eye on DNA. She does a great job of highlighting the issues. Which, once again brings me to the point that diagnosing pre -disease is just as much medicine as diagnosing full on disease.
The notable item...
minimum requirements for any genetic testing protocol.”
1. A knowledgeablehealth professionalshould be involved in the process of ordering and interpreting a genetic test.
2. The consumer should befully informedregarding what the test can and cannot say about his or her health.
3. The scientific evidence on which a test is based should beclearly stated.
4. The clinical testing laboratory must be accredited byCLIA, the Stateand/or other applicable accrediting agencies.
5.Privacy concernsmust be addressed.
The Sherpa Says: Well. You have got to ask yourself. If the professionals are stating these are MINIMUM requirements.....what is everyone else doing? And why aren't they all doing the minimum?