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Does anyone have children with Microcephaly?


Posted by robertk

My daughter was diagnosed when she was 18 months old with Microcephaly from a genetic disorder of extra chromosome 17 (Chromosome 17+ 13.3P). She is now almost 4 years old and I need to find out if there are any alternative treatments for this disorder.  According to her doctor, this is her condition for the rest of her life.  I hope this is not the case and I can find some sort of cure or treatment that life will be easier for her as she get order. Any help or guidance will be appreciated.  

 

 
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