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Could you please add these family support resources to your Trisomy 13 - Patau Syndrome page?


Posted by LivingwithTrisomy13.org

These are the top two Family Support Resources for Trisomy 13.

SOFT http://www.trisomy.org

Living with Trisomy13 - Patau Syndrome http://www.livingwithtrisomy13.org 

Families given a trisomy 13 genetic profile are often given very little hope for their child. When families begin searching the internet, they want to see other families, other children, they want to see the reality of what is before them. The articles you post do not offer this support. Please add these links if possible to your Trisomy 13 - Patau Syndrome support page. 

Thank you,

ThereseAnn, mom to Natalia, now 9yrs., Living with Full trisomy 13. 

 
Answers (1)
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Ali

If you want more information on Trisomy 13 you can find it in:

http://www.geneticsofpregnancy.com/Encyclopedia/Trisomy_13.aspx?pid=37

This is a site with huge Information On Pregnancy Diseases And Genetic Testing.

NOTICE: The information provided on this site is not a substitute for professional medical advice, diagnosis, or treatment. Never delay or disregard seeking professional medical advice from your physician or other qualified health provider because of something you have read on Wellsphere. If you have a medical emergency, call your doctor or 911 immediately.
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