These are the top two Family Support Resources for Trisomy 13.
Living with Trisomy13 - Patau Syndrome http://www.livingwithtrisomy13.org
Families given a trisomy 13 genetic profile are often given very little hope for their child. When families begin searching the internet, they want to see other families, other children, they want to see the reality of what is before them. The articles you post do not offer this support. Please add these links if possible to your Trisomy 13 - Patau Syndrome support page.
ThereseAnn, mom to Natalia, now 9yrs., Living with Full trisomy 13.
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