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What Does It Feel Like To Have Sjogrens?

Posted Mar 30 2009 3:40pm
I get asked this a good bit, because on the outside I don't look sick. I hate to say that I am "sick", but in reality....I am.

Sometimes I sit back and want to scream "THIS SUCKS, I AM ON THE DAMN KIDNEY TRANSPLANT LIST BECAUSE OF SJOGRENS"! *sigh*

But I can't change what has happened to me. I can't make the decision to break it like a bad habit.

I can only make the decision to be positive and accept the things I can not change.

So, what does it feel like to have Sjogrens?

The best way I can describe is it is like the feeling you get when you come down with the flu. Your body aches and you are exhausted imagine that everyday....24/7. You get use to it and some days are better than others.

The worst is the fatigue, but as I said before Chronic Kidney Disease can make you feel the same way. Weak muscles, fatigue, shortness of breath, and a general feeling like you are coming down with something.

What are some of your symptoms? What is the hardesr for you?
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