Has sickle cell limited any areas of your life? Yes it has. I am blessed to be a creative artistic self employed person. I remember the stretcher coming into IBM and taking me out. Needless to say I didn’t like that look and it became a frequent occurrnece. I know that stress, climate, my physical state at any given time can cause severe disruptions in plans, work, travel, pregnancy. But I do my best to give my all. I complain less now that I’m a mom and I just get it done, If I can’t today, we’ll try again tomorrow.
When you do reach obstacles in your life, what helps you through it? My son and my husband help me mentally and my Faith helps me Spiritually and my sense of purpose helps me emotionally. A Bible passage that helps me through hards times is:
2 Corinthians 12:9 -And he said unto me, My grace is sufficient for thee: for my strength is made perfect in weakness. Most gladly therefore will I rather glory in my infirmities, that the power of Christ may rest upon me. (Still working towards the “glorying in my infirmities” part. lol)
Do you have regular pain (more than 2x a week)? Oh no not even close. Only when my hemoglobin drops and that’s about 3 months between hospitalizations.
How do you cope with this when you are working? I stop working and give myself time to heal.
What is your daily medication regimen and what medications do you take when you are in pain? Aleve is good, Hydrocodone is better but it keeps me nauseated.
Time to get all gushy and romantic…How did you meet your husband? Anthony and I met during one of a trillion events that he has coordinated. He is an acting coach, director ,and arts advocate. I had a 3-hour radio show every Saturday and I interviewed him for his upcoming event. I was also performing a skit at his event and had to model. A few days later I called him and left a message telling him how absolutely grand it was and he called back. I said “Hello?” and he said, “Will you marry me?” We’ve been inseparable since.
Awwww, that is so sweet! He knew right from the beginning *sigh* How does Anthony help you manage your sickle cell? He didn’t always understand and said once that basically I should get over it because it was only physical. After seeing the trials that no one would ask for he knows better how to hold my hand through it. That’s really all he can do. He feels better if he camps out at the hospital with me until “we” can go home. He realizes the demand being a mommy puts on me. I told him its like ever since Jahbe was conceived he and I have been greedily drinking from the same half full glass. There’s not enough in it for him and there’s not enough in it for me. So Anthony takes the baby when I need rest and is the infinite “laundry doer”.
I’m sure every single warrior reading this is praying for his/her ace. How has sickle cell affected your personal life? It has made me much more thoughtful towards others and about how and why I use my physical resources. I make everyday the best day I can with my family and reassure them of God’s plan for our life. I definitely let them know that my life energy is on the increase.
To me it sounds like sickle cell has made you more aware and present. Looking at the 14 year old version of yourself, what would you tell him or her if you could…? Find in yourself the tenacity to get through the hard times. Be determined to succeed. You can do this.
Is there anything else that you would want to tell other sickle cell warriors? Don’t be passive if you have something to say. I have had nurses and even doctors ask me medical questions because I demonstrate a depth of knowledge about what concerns me. Be educated and advocate for your best health.
Thank you La’Veda for sharing your life and your experiences with us. Keep on living your dreams! You are one awe-inspiring lady! Congratulations on all your achievements and stay blessed.
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