I finally got my urine results back. It turns out I didn't need to rush out to get the ciprofloxacin it was the wrong medication. So I'm to try another one. I.m still so bloody lethargic. I am still leaking. In fact I'm now leaking at 250mls. The plus side is that the kidney crumping isnt so bad yeeharr. Got to be some positives over this????. My blood results showed in the hospital my potassium was high. They did an E.C.G but didn't retake the blood test( they weren't sure that it was correct to begin with).Yet they still sent the supposedly high potassium result to my G.P office.
I dunno, I'm not sure anyone really gives a shit. Maybe I shouldn't either? Oh well at least I get to see my Consultant next week.....I have many questions I'm starting to wonder if they are all worth asking. For example what happens in follow up regarding Neo-Bladder complications 're' the long term Metabolic (such as Metabolic Acidosis which I have never been checked for) complications of having a Neobladder, which apparently there can be significant changes. B12 check ups? My grandmother used to have b12 injections. From what I have read it could be years down the track that B12 could be affected, but as there is a family history would I be at more risk? Then there is the possibilities of cancer within the bladder, from the contact of urine in the bowel. This also may eventuate years down the track. I'm not out to look for complications, these are just the things that are listed in most of the information available on Neo bladders. I want to stay healthy, so I can be a great parent, and be able to rejoin the workforce. Part of that is prevention of these possible complications. I was told to research before the first surgery. Part of the research did bring up all of these issues. Yet I relied upon my Consultant at the time to cover all the bases. So I wouldn't be out of place to ask without the surgeons ego being dented in some way. But why do I have to bloody well ask these questions, or have to do any research.When I have asked certain things in the past I kind of receive the raised eyebrow brushed off look.
Its hard also when I have no fellow Neo-bladder buddy to chat with. I was asked before my surgery if I wanted to meet someone with one. I agreed to do that, well and you guessed it it never happened. So the internet, and stalking other sites for titbits has been my only reference since the surgery.
I think my body is worth looking after. I believe my life is worth some value even if the powers that be act like I'm worthless. This for me has been a horrible and scary journey. I am grateful for not having the pain, and infections I did. However I have had a raw deal with having both a stoma bag, and catheterising.
I apoligise to those who have to deal with with a case such as mine, it must be hard to deal with a past victim of abuse.