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Scott Shoemaker's "Autistic" Son and TD-DMSA

Posted Sep 14 2008 6:11pm

(Posted by Patrick Sullivan Jr. 9/26/05)

Scott Shoemaker emailed me for the first time on August 29, 2005 in response to the post Dr. Buttar on IV EDTA Chelation and the Autistic Boy's Death. Since then, we've exchanged several emails back and forth.

Scott was the one who pointed me to the Autism Research Institute's survey of parents and the effectiveness of treatments, which he says has pretty much been his guide for treating his "autistic" son, Joshua.

Interestingly, Scott has *NOT* been using TD-DMPS, but has acheived these results using TD-DMSA. Critics of Dr. Buttar and TD-DMPS should take note of that!

Scott sent the following email to me late last night. (He also posted it here on the Yahoo! Group ChelatingKids2. Registration required.) It is a very touching story that offers more anecdotal evidence that when heavy metals are chelated, autistic symptoms begin to abate. It sounds very similar to Kevin Champagne's story, except of course that Scott is using TD-DMSA and Kevin is using TD-DMPS.

This was posted with Scott's permission. Somewhat long, but it's a quick read. Scroll to the bottom for detailed TD DMSA results after 3 ½ months.

A couple of days ago, I took my (just turned) 6 year old son Jacob to his flag football practice. I usually bring his (almost) 3 ½ year old little brother Joshua with me, and he sometimes gets to run around with the other kids before practice. I was speaking with another parent that was there, and I looked up to see the coach putting a flag belt on Joshua. We laughed thinking that he was putting a belt on him by mistake, and he just did not notice that it was my younger son. Joshua is very tall and stocky for his age and is commonly mistaken for being older. He is bigger than the smallest 5 year old on the team. The league has kids ages 5-7.

After the coach was done putting the belt on him, I called Josh over to me and showed him how the flags worked. I was worried that now that he was wearing a flag belt, he would disrupt the practice by not wanting to leave the field while the team practiced, so I was trying to distract him.

I was somewhat surprised when the coach yelled over to us, "C'mon, Joshua, let's go!" Joshua looked over at the coach, and then at me with these big beaming blue eyes.

I said, "Well go on". I was not sure what was going to happen. He ran out onto the field and kneeled on the ground with the other kids with a smile from ear to ear as the coach spoke to them all as a team. A few minutes later, I was astonished as he got up and ran a few laps around the field hanging with the others as if he had done it several times before.

From there, he stood next to his 6 year old brother in a circle with the others as they proceeded to do jumping jacks and other calisthenics. He needed no direction or help. He watched the others and imitated them. He was one of them.

He practiced with the other kids for a full hour, doing everything that the coach had asked him to do. He would get into a football stance and line up with the rest of the kids and move when the others did. Sure, he struggled with the concept of football and what to do when he got the ball or when to grab the flags off of the guy with the ball, but most 3 1/2 year olds are the same way. He was having the time of his life. He was a football player.

At the end of the practice, I thanked the coach for letting Joshua be a part of practice. I told him that what he did really meant a lot to me and both of my sons.

He said, "Actually he did great out there. He did everything I asked him to. The other kids had a lot of fun with him today."

Josh and Scott Shoemaker I then proceeded to tell the coach Joshua's "little secret". I said, "Coach, I do not think you realize the impact of what you did today. You see, Josh was diagnosed with autism 7 months ago, and was barely able to communicate with us until we started treating him for toxic metal poisoning 3 months ago."

The coach seemed a little shocked and taken back at first. He told me that he had not even the slightest clue that there was anything wrong with him. He asked me how old he was. I told him that he was almost 3 ½. He looked at me in amazement, saying that he had a 3 ½ year old son at home that had no interest in going out onto the field with the older kids.

I further explained that this was the same little boy who (until only a few months ago) had days that he would spin himself around in circles all day with his eyes rolled back into his head for entertainment, and had little interest in other children. Back then, he would not even turn his head to look at me when I came home from work if he was preoccupied, not even if I screamed his name a dozen times at the top of my lungs and stood next to him in his peripheral vision.

The coach was shocked and really did not know what to say. He realized that what he did meant a lot to me, and saw how it had impacted me. The fact that he did not know that there was anything wrong with him was also something I was not used to.

The moral of this story...

There are so many times that we do little things that make an impact and touch the lives of others and do not realize it (like the coach). Today, I sent this story to a girl whose 2 year old stopped talking after a flu shot in December. The boy was later diagnosed with autism. The girl forwarded it to some of her friends and family. One girl that she forwarded it to (who does not have any affected children) emailed me and said that she cried when she read it, and thanked me for sharing it. She is the one who pointed out the fact that I, myself, had touched someone else simply by writing this story and probably did not realize it. That is why I edited it and posted it here.

My message...

For the parents out there that are reading this and considering chelation therapy for their "autistic" child and are trying to decide whether it is worth it, let me just say this. Do not listen to the people that tell you that this is BS and that the parents doing this are stupid. Remember one thing. The vast majority of these people telling you NOT to do it HAVE NO EXPERIENCE WITH IT! Instead, listen to the thousands of parents that are doing it now. They do not lie. Get several opinions. Listen to the other parents that are not doing it also and compare the results of the two sets of children. That is why I decided to proceed with this treatment. Out of the dozens of parents of "autistic" children that I spoke to before I started my son's treatment, all of the ones that were seeing drastic improvements in their children had one thing in common.... Chelation Therapy.

Also, listen to the doctor’s who have risked their careers and are sometimes ridiculed by others in the medical field for taking a stance on something that they believe in, and are seeing results. Many of them have done the research themselves unlike the doctors who quickly discount it because that is what they learned they should do in medical school. Look at some of the urine, stool, and hair tests of the children of some of these "crazy" parents that are doing this.

The Bottom Line, and some final thoughts...

If chelation therapy is quackery, then I will be a quack all day if my son is clearly benefiting from it. If it is a "placebo", as some say, then I can attest that it is the most effective placebo around, and I want more of it for my son. Maybe somebody could explain this to my 3 year old who does not know what a placebo is. This therapy is working for us. I have the evidence running around my home playing with his brother and sister and other children, and now he smiles at me every day when I come home from work as he runs up to give me a big hug when I walk in the door. Three and a half months ago, he would not have even turned around.


***Notes on Joshua's Progress after 3 ½ months of chelation...

We have been chelating with TD DMSA from the Lee Silsby clinic in Cleveland for a total of 9 rounds, or just over 16 weeks, in a 3 days on 11 days off protocol. He also gets TD glutathione and a slew of supplements on a daily basis.

When he was tested 5 months ago around his 3rd birthday, his comprehension level was that of a 13 month old. He was considered 22 months behind. Two months after he was tested, he had made little progress. That is when we started chelating him. Since then, his progress has exploded. The results that we have seen with him are amazing. He was just retested, and he is now considered only 10 months behind in speech and comprehension (31 months - he is 41 months old). If these tests were accurate, that means that my son's comprehension level jumped ahead 15 months in only a 3 month period of time!

Here is an outline of progress that he has made in the last 3 months.

Before we started, Joshua was afraid of his little sister and would not go near her or take an interest in her. After 3 days of chelation, he started playing with her, giving her toys, her binky and laughing and interacting with her. Now that is all he wants to do! He also gave her a hug and a kiss that same day on his own. It was astounding. (Update -- Now he looks out for her, telling her "no, sissy" when she is doing something she is not supposed to and he walks behind her holding her hands to help her walk. He also tries to have conversations with her.) Besides chelation, she has been the best thing for him.

He stopped spinning himself immediately after his first 3 day treatment, and has not done it since. Keep in mind that this was an every day occurrence.

He learned how to wave hello and good bye, and now understands that when I leave for work in the morning that I am coming back, and he no longer screams when I walk out the door (he gives me a smile and a hug, says good-bye, waves and sometimes says I love you Daddy!). I get choked up every time I leave the house.

His eye contact is EXCELLENT compared to before. It is not even as issue now. Before I would have rated it slightly above average for someone with his condition.

He learned to take off and put on his own shoes and he lets us brush his teeth.

He used to want to watch the same movies over and over again ALL THE TIME. Now, he hardly watches the TV, and when he does, it is usually something that his older brother would watch that is for older kids that would have never interested him before.

He will now turn around immediately if I (or others) call his name at a normal tone on the first try instead of having to stand next to him and scream progressively louder a dozen times.

He no longer has tantrums of any sort.

His comprehension has gone through the roof. I can literally tell him to do anything for me and he understands. He previously only understood a few phrases. I am constantly testing him with tasks, and 9 times out of 10 he will understand and do what I tell him.

His interaction with other children has also improved drastically. He seeks out other kids and tries to play with them on the playground we take him to. He used to just watch them or sit by himself and play with the toy du jour.

He is speaking in longer phrases and picking up more words every day. We are starting to have conversations with him. He maintains excellent eye contact and uses proper facial expressions and voice inflection during these talks.

He has just started pointing, asking questions, and commenting on things that he would have never noticed before. (Example: He walked up to me today and pointed to a cut on my ankle when I was lying on the couch and said, "Oh, No! What happened? Are you alright? You have a BooBoo." I told him that I fell down and got hurt. He walked over to a cedar chest and got a blanket. He then covered up my ankle very gently and said, "There... All better
now".) Three months ago, he would have not even noticed it and would have said nothing. He probably would not have even interacted with me unless I tried to initiate something with him first, and that is a stretch.

His stimming has decreased. He still does the hand flapping thing occasionally, but not as pronounced or as much (I suspect that he either has yeast or the measles virus in his gut like a lot of these kids have).

He attempts to (and sometimes does) get himself dressed.

He washes his own hands.

Please keep in mind that all of this progress has been in the last 3 ½ months. His speech therapist has told us that he has progressed faster in the shortest amount of time than any other child that she has ever worked with (she has been doing this since 1988). She has also told us that he is the only child that she has worked with that has been going through this treatment that she knows of. We originally did not tell her, because we wanted to see if she noticed a difference (she did immediately). She has since sent other parents to us.

One other note... This child has never had any other behavioral therapies other than one hour of speech and OT a week. He is not on a GF/CF diet because he is not g&c intolerant. There is nothing else that I can attribute his progress to. My wife and I make it a habit to constantly challenge him and test him, and he never ceases to amaze us.

Hopefully, someone will be able to get something from this post. Feel free to contact me if anyone has any questions on this.

UPDATE OCT 6, 2005: "Until someone can prove to me that chelation is NOT what is making my son better, I am in it for the long haul.You see, proof goes both ways ;~)" Read the rest of what Scott Shoemaker had to say in that comment.

UPDATE NOV 14, 2005:Read the latest update from Scott about his son Joshua.

UPDATE MAR 4, 2006: The Shoemaker's story is syndicated nationally to all NBC affiliates. (Days before the story airs, the Shoemakers get rail-roaded by a clinic trying to capitalize on their story. Read Scott's clarification.)

RELATED: Read about Kevin Champagne's "Autistic" Son.

For more info on mercury poisoning and what you can do about it, please, a group founded by parents for parents.

Technorati Tags:Autism,Mercury Autism

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