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PatientsLikeMe : Research: Lithium & ALS

Posted Nov 18 2008 12:13am

PatientsLikeMe : Research: Lithium & ALS: "At PatientsLikeMe, we want to show each individual patient what the effects are of the treatments they're taking as individuals and as a patient group. This page is an attempt to match changes in an outcome measure (the ALSFRS-R) with the introduction of a treatment (lithium). The filters we've provided can be used to look at different subgroups of patients. You can then generate graphs of those patients and their outcome scores before and after lithium. This is an 'alpha' product and we will be updating and improving upon it every day. We are committed to openly presenting the data in a statistically meaningful and medically appropriate visualization."

This is a completely new way of doing medical research, using the power of Web 2.0 ! Not only will the research be much less expensive; it will also be tailored towards finding solutions to the problems patients want answers to - not to questions the pharmaceutical companies pay for !

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