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Posted Aug 27 2009 11:34pm
I am going to call the neurology office tomorrow, they should have the results by now. It's been a full week!

I finally got some information from the nurse at the urology office. Peanut's surgery is scheduled for Sept. 29th. She should be inpatient anywhere from 2-5 days, depending on how soon she tolerates feeds afterward. That makes me think it will be at least 5 days. LOL

She will have a catheter in the Mitrofanoff stoma for 10 days before we use it, to allow it to heal. She will also have a suprapubic catheter in for three weeks. If the Mitrofanoff is healing and working fine, it will be removed at the three week mark. I asked the nurse if she is allowed to go to school with the s/p catheter in, and she said she wasn't sure. I guess she's going to ask the doctor and get back to me.

So she will come home with two urinary catheters, one in the Mitrofanoff in her belly button and one just below it coming out of her belly. I assume this means to urinary bags attached. What fun!

Peanut's birthday is about 2.5 weeks after her surgery. We will do a small family birthday dinner on the date, but we are going to postpone her bigger party for another few weeks. I want to be sure she's comfortable and able to enjoy it.

Not much is going on right now. As I like to say, boring is great! :) I will update as soon as I hear the MRI results.

Thanks for always checking in on us!!
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