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Hi I'm a sickler and quite impressed by these Nicosan stories. I was on hydrea for about 18 months and although my Hbf increased felt extra tired and continued to get sick . I had a crisis a few weeks ago and was hospitalized for 2 weeks with pneumonia. My Hb dropped down to 4.5 and the doctors were surprised that I walked out of hospital. I'm still very week from that last hospitalization and want to find an alternative to Nicolsan. Can any one tell me how I can get it.
Thanks
Hi thanks for sending me the drug . I've been on it now for about six weeks hope to continue for a while. Was just wondering... does any one take regular blood tests since starting on Nicosan?
I have been on the drug for about 6 weeks now and there seems to be no difference in my results. I know it's still quite early but my biggest prob with sc is the low hemoglobin. I run on 6.2 or near abouts and feel so weak all the tiME.
How does nicosan affect the hb , white blood cell count, plateletes the spleen function, kidneys, etc?
If you have seen any changes in lab results plus experience an increse in nergy levels please let us know. Cheers.
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Rock on! That's so great! Here's one from another user with Sickle cell thallesemia...
So...what's your Nicosan story?