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Neuromyelitis Optica - Devic's Disease

Posted Nov 19 2009 10:00pm
I met my new neurologist and she is really a cracker jack. She is young and is on top of the research. She spotted what she thought were a couple of very small lesions on my May 09 MRI but they were tiny. My neuro testing went really well and she wanted to do some blood test on me for something called Neuromyelitis Optica (NMO) or Devic's Disease. This affects the eyes the most and this seems to be where my MS has concentrated the most. NMO is a cousin of MS.

The blood test was developed by the Mayo Clinic and it is a very understudied "subset" of MS. My neurologist - Dr. Pandey - called it a "cousin of MS". If I am diagnosed with NMO, my treatment will change ... but not much else. It is treated with IV Solumedrol and something called Imuran (an immunosuppresant). It can also be treated with plasma exchange.

If I look (no pun intended) at all of my major relapses they have concentrated on the eyes. The most recent was in May when my Dad passed away. I feel like I am always living between cases of optic neuritis (ON) and I never can find that pair of glasses that works for me prescription-wise.

If the test is positive, it will be a honing in on the diagnosis and treatment. I need to get through my endometriosis surgery and stay well and positive. That is what my goal is.
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