My Medical Record .com Patient Controlled Patient Managed Medical Record Information
Posted Nov 18 2008 12:17am
Patient Controlled Patient Managed Medical Record Information: "The seven patient and consumer principles endorsed by the Personal Health Technology Council are: 1. Individuals should be able to access their health and medical data conveniently and affordably. 2. Individuals should be able to authorize when and with whom their health data are shared. Individuals should be able to refuse to make their health data available for sharing by opting out of nationwide information exchange. 3. Individuals should be able to designate someone else, such as a loved one, to have access to and exercise control over how their records are shared. 4. Individuals should receive easily understood information about all the ways that their health data may be used or shared. 5. Individuals should be able to review which entities have had access to their personal health data. 6. Electronic health data exchanges must protect the integrity, security, privacy, and confidentiality of an individual's information. 7. Independent bodies, accountable to the public, should oversee local and nationwide electronic health data exchanges. No single stakeholder group should dominate these oversight bodies, and consumer representatives selected by their peers should participate as full voting members.
'When all Americans have the ability to review their own medical records online, we then will begin to see a health care system that reduces disparities in medical care, and increases the quality of care for all Americans,' said John R. Lumpkin, M.D., M.P.H., senior vice president and the director of the Health Care Group for RWJF. 'People want to take advantage of health information technology, but they need to trust that the new information environment respects their privacy and ensures the security of their information. Therefore, the new health information technologies that are being created, as well as the health information environment itself, must focus on consumers' concerns about privacy, security, and personal control.' "