That moment when something suddenly makes sense always blows me away. I have been having real problems with stomach distention and subsequent acute pain. It became really unamanageable and distressing. The answer I've self discovered is stress! I have kept a strict and stringent food, fluid, weight, temp and activity chart over the past 3 weeks and I could see the pattern. When I feel autonomous and I stick firmly to
my daily routine of meds and rest and eating points then I am fine. As soon as I tamper with it, I pay a price. My body is extremely sensitive and really doesn't like change, it gets rather upset. This revelation does worry me slightly because of course, naturally there will be times that I have to adapt and accomodate certain situations that may conflict with
my schedule.On the plus side, I have had a good few days. I have been spending time with family which was really nice :-) but now the holidays are over its back to the daily grind. I may have mentioned its birthday month in my world and so I am trying to juggle events and finances at the same time. I am very much looking forward to a do this weekend...think its some kind of jazz bar for my friends 29th birthday. It will be in my old stomping ground where I did my 1st degree and I always love it up there. My main concern are my hair and lashes at the mo, but I could fill a zillion pages about that!!
I caught up with an old school friend since I last blogged and it was really nice to see her. We haven't seen each other since a week before I had the transplant so it was really crazy to see her now. For one reason or another we ended up cancelling on each other...but yes, we finally got a chance to natter and she kindly helped me at the local supermarket to get some supplies in. We have organised a pamper day for later in the year (her xmas and bdy gift) so I cannot wait!
I have been contemplating whether to get a
heart rate and blood pressure monitor as there are times when I know I am pushing things but without realisation of just how far. Bending down is a true no no now. I am noticing that my side effects have increased ten fold and I literally feel like I am going to pass out with the slightest head movement downwards. I get the sudden loss of blood pressure and its becoming a little scary so now I avoid it at all costs. I jsut don't want to be constantly reminded of my medical problems by walking around with monitors all day. Its probably why I haven't bothered before. Sadly though, my
dizzydora moments means that some of the things I would still try and do can;'t really be done now and I discussed this with my GP this week. I am just blessed to have really strong support from family and friends who do their absolute best to help me when and where they can.
Thank you guys!!!So, the Christmas tree went down late Tues eve but I wasn't really sad about it as I usually would be. I think its because I really do welcome 2010 and I am ready and charged to go! The first thing is to complete the decoration in my bedroom. It has invloved a teeny weeny bit of expenditure but when its finished I know I will be super happy :-) I have had a 'vision' for a long time and I just feel its time to implement it now, especially as I spend so much time trying to rest and sleep (though unsuccessful) in there. I still have major organisation of my sea of clothing to contend with. I am very lucky to be able to have things I love all around me(even the old and tired ones) but some things need a new home. I do feel good when I can give to charity or good causes so its all good!
Been busy this week basically making calls and badgering people to hear my voice!! I want to do some talks about my experience and I thought where best to start: my own community. Raising awareness about organ donation and enabling people to sign up is very important to me. I have had some success which is fab and I will fill you in when I know more. Also I am
arranging a cake fundraise and have ticked some boxes: I have ideas, a team, some materials, will have cakes but...ahhh...need a venue. Umm...there is something in the works so fingers crossed, it will come through!
Already I have started
making some cards for sale: Valentines, Easter and Mothers Day. It seems bonkers but believe me, I need enough stock to list them in various ways (some are sold to fundraise and some to fund further crafting) so I need to get going. I have added other gift items now such as sock toys, purses so I really need to allocate and utilise my time well.
I have still yet to sign up for my
sign language course. I just haven't had time to get down to the college but will make it my mission for next week, weather permitting. Some work opportunities have come my way the past week or so and at the last minute I find myself shying away. I know that really I am not ready to commit to full on stuff whilst I still endure acure unmanaged pain on a daily basis no matter what prescribed pain relief or exercise I do. I know there is a plan on the cards from
a team of anaesthetists and a super fab doctor who will do their absolute best to sort me out. Sadly the appointment has been cancelled next week and I am to await a new date. One of the methods make involve regualr injections in the intercoastal muscle to almost paralyse the pain synapses or some medical maloney. It doesn't sound great but short term serious pain vs long term serious pain? Well I know what I'll be choosing! They are reluctant to go down that road due to my complex ongoing conditions which no body seems to understand?!!?
Got some housework to glare at and perhaps get a bit frustrated by before I hit the sack and lie there for hours
trying so desperately to sleep. Was nearly offered some sleeping tablets but then the doc quickly changed her mind. Thats's just as well as I had no intention of taking them. My experience of them is that they don't work anyway. It doesn't really deal with the underlying cause at the end of the day. I think I know that I am not quite managing my days well enough. I often give others a false belief that I am ok, when I am not. This sometimes leads to me really pushing myself and undoubtedly
my body responds by shutting down as the duracell battery runs low. The good thing is, I can do something about it. It means not trying to keep up with others and just be me. No one puts pressure on me, I do it to myself as I've always done, its just that now my body is different. It doesn't like imbalances. We have a biological clock for a reason and I must respect that.
Think there are some fab celebrations for Chinese New Year coming up...hoping to see the parade!
On the plus side, I have had a good few days. I have been spending time with family which was really nice :-) but now the holidays are over its back to the daily grind. I may have mentioned its birthday month in my world and so I am trying to juggle events and finances at the same time. I am very much looking forward to a do this weekend...think its some kind of jazz bar for my friends 29th birthday. It will be in my old stomping ground where I did my 1st degree and I always love it up there. My main concern are my hair and lashes at the mo, but I could fill a zillion pages about that!!
I caught up with an old school friend since I last blogged and it was really nice to see her. We haven't seen each other since a week before I had the transplant so it was really crazy to see her now. For one reason or another we ended up cancelling on each other...but yes, we finally got a chance to natter and she kindly helped me at the local supermarket to get some supplies in. We have organised a pamper day for later in the year (her xmas and bdy gift) so I cannot wait!
I have been contemplating whether to get a heart rate and blood pressure monitor as there are times when I know I am pushing things but without realisation of just how far. Bending down is a true no no now. I am noticing that my side effects have increased ten fold and I literally feel like I am going to pass out with the slightest head movement downwards. I get the sudden loss of blood pressure and its becoming a little scary so now I avoid it at all costs. I jsut don't want to be constantly reminded of my medical problems by walking around with monitors all day. Its probably why I haven't bothered before. Sadly though, my dizzydora moments means that some of the things I would still try and do can;'t really be done now and I discussed this with my GP this week. I am just blessed to have really strong support from family and friends who do their absolute best to help me when and where they can.
Thank you guys!!!
So, the Christmas tree went down late Tues eve but I wasn't really sad about it as I usually would be. I think its because I really do welcome 2010 and I am ready and charged to go! The first thing is to complete the decoration in my bedroom. It has invloved a teeny weeny bit of expenditure but when its finished I know I will be super happy :-) I have had a 'vision' for a long time and I just feel its time to implement it now, especially as I spend so much time trying to rest and sleep (though unsuccessful) in there. I still have major organisation of my sea of clothing to contend with. I am very lucky to be able to have things I love all around me(even the old and tired ones) but some things need a new home. I do feel good when I can give to charity or good causes so its all good!
Been busy this week basically making calls and badgering people to hear my voice!! I want to do some talks about my experience and I thought where best to start: my own community. Raising awareness about organ donation and enabling people to sign up is very important to me. I have had some success which is fab and I will fill you in when I know more. Also I am arranging a cake fundraise and have ticked some boxes: I have ideas, a team, some materials, will have cakes but...ahhh...need a venue. Umm...there is something in the works so fingers crossed, it will come through!
Already I have started making some cards for sale: Valentines, Easter and Mothers Day. It seems bonkers but believe me, I need enough stock to list them in various ways (some are sold to fundraise and some to fund further crafting) so I need to get going. I have added other gift items now such as sock toys, purses so I really need to allocate and utilise my time well.
I have still yet to sign up for my sign language course. I just haven't had time to get down to the college but will make it my mission for next week, weather permitting. Some work opportunities have come my way the past week or so and at the last minute I find myself shying away. I know that really I am not ready to commit to full on stuff whilst I still endure acure unmanaged pain on a daily basis no matter what prescribed pain relief or exercise I do. I know there is a plan on the cards from a team of anaesthetists and a super fab doctor who will do their absolute best to sort me out. Sadly the appointment has been cancelled next week and I am to await a new date. One of the methods make involve regualr injections in the intercoastal muscle to almost paralyse the pain synapses or some medical maloney. It doesn't sound great but short term serious pain vs long term serious pain? Well I know what I'll be choosing! They are reluctant to go down that road due to my complex ongoing conditions which no body seems to understand?!!?
Got some housework to glare at and perhaps get a bit frustrated by before I hit the sack and lie there for hours trying so desperately to sleep. Was nearly offered some sleeping tablets but then the doc quickly changed her mind. Thats's just as well as I had no intention of taking them. My experience of them is that they don't work anyway. It doesn't really deal with the underlying cause at the end of the day. I think I know that I am not quite managing my days well enough. I often give others a false belief that I am ok, when I am not. This sometimes leads to me really pushing myself and undoubtedly my body responds by shutting down as the duracell battery runs low. The good thing is, I can do something about it. It means not trying to keep up with others and just be me. No one puts pressure on me, I do it to myself as I've always done, its just that now my body is different. It doesn't like imbalances. We have a biological clock for a reason and I must respect that.
Think there are some fab celebrations for Chinese New Year coming up...hoping to see the parade!