I Received Help in Spreading the Word About Dystonia
Posted Oct 28 2009 2:04pm
"On this day, at least one more person knows about this rare disorder called . And for that, I am thankful."
Yesterday, I commented on a young woman's (her name is ) blog in which she mentioned the story about the woman who had developed after receiving the Flu shot.
commented that when she first saw the video footage of the young woman moving strangely, her instinct was to laugh, because it looked like a prank or joke. As I read further, she stated that she now realizes that the woman has and that she prays for her recovery.
After reading her blog entry, I wrote a brief message on blog about my experiences with Cervical . I stated that more people are slowly becoming aware of this cruel disorder due to this unfortunate "Flu shot" incident and through media coverage about the disorder that has been on shows such as The Doctors, The Oprah Winfrey Show, The Today Show, and a few others. I also mentioned that I hope more research and funding will be given to this disorder and similar disorders.
This morning, I got a nice surprise that literally put tears in my eyes. I have an alert on one of my email accounts that will alert me to certain topics such as . So, this morning, blog popped up as one of my alerts.
So, I downloaded her blog. As I started reading her most recent entry, I noticed that she wrote about my comment to her. She discussed how she had not been aware of (most people have never heard of it). She also mentioned how she researched the disorder and she encouraged her readers to read my blog to learn more about .
In addition, she wrote me a very touching message regarding my spirit and courage.
I responded to her with a very warm message. I was very moved by her empathy. I was also impressed and thankful for her willingness to appeal to others to educate themselves about this disorder. She even placed a Dystonia Ribbon on her blog. Thanks!