Since I have started my radio show, Living With RSD , people have been asking me why I do it. How do I push through my own personal issues with RSD (reflex sympathetic dystrophy)?
The answer is simple: When I was at my worst, I looked for help. I looked for information. Sometimes I found it but more often than not, I was disappointed. This chronic condition, that me and a million other people suffer from is "hidden". There is no definitive test for a diagnosis of RSD/CRPS. There is no way that another person can stand in my shoes and feel the incredible buring that I feel in my limbs daily.
So I made a promise to myself; to follow in the footsteps of the few others that have been supporting others for years. Thank goodness the numbers are growing. But, we can never have too much information. I came together with everyone who has sent an email, sent a virtual hug or made a short phone call to a person with the new diagnosis of Reflex Sympathetic Dystrophy.
To explain what we know about RSD. To help them find doctors in their area. To call them and let them know, They Are Not Alone.
Please join me. I can guarantee you one thing. YOU will feel better! Yes, you heard me right. When we help others, it makes our own pain more bearable. No, it will not "cure" you or make your swelling go down. But, I have never felt more alive, more needed and more loved than I do right now.
I don't know how long my health will allow me to continue this every day. There are days when I can't get up because of pain. Some days are spent in my wheelchair, not even able to walk.
Then, I get a call or email, a "virtual" hug from someone and I know tomorrow will be better. Just because I know people care about me.
I will never ask you for money. I will never charge anyone for information, referrals or a phone call. I would like everyone to "pay" it forward. When you feel better and are able, YOU make that phone to someone in distress. YOU send a hug. And, when you do, you'll understand what I mean.