Looks and questions. Curiosity. Little Miss gets fed via g-tube in public quite a bit. Medically it is the thing that keeps her alive. She has some “disabilities” but the only chronic threat to her life is her feeding limitation. Kids look – with their little open faces – they don’t hide their curiosity. Adults are respectful (generally) and not invasive. Of course we make quite an appearance – a “giant” syringe, a tube going to her stomach, up under her shirt, and this container of what looks like pea soup on my lap.
I’ve come up with a short answer to the looks and to the questions: Her brain played a trick on her mouth and her mouth thinks it doesn’t like food.
I like this explanation. Kids and grown-ups alike “get it” and it is a short answer that doesn’t embarrass my daughter and even helps HER understand it more. It isn’t her fault. We’ve done everything we can and we haven’t made any significant progress. I wish it were otherwise, but meanwhile we have to be able to put it in perspective and shrink it down to an understandable explanation.