I have posted before that every time that I go to the doctor, I get a new diagnosis. Well, earlier this week I went to the doctor to see about my fibroid issue. I was hoping that I would qualify for a fairly new procedure for fibroids called “Doppler Guided Uterine Artery Occlusion” I included an article about it from the Oxford Journals. Anyway, the doctor told me “I have good news and bad news,” that is never good. The good news was that my fibroids had not grown any in the past two years. The bad news was that I need to have a hysterectomy and re-constructive surgery. He said besides the fibroids and the cysts, I have Uterine Prolapse. And to think, I was worried about my boobs or my bum falling later in life. Years ago, I worked with a woman that had this and had a hysterectomy. But, she is the only person that I have ever known with it. It seems like that she was in her late 30’s? I am really starting to hate going to the doctor.
The “hysterectomy” itself doesn’t bother me as much as the surgery does. I don’t do pain well and there are not many pain killers that I can take either. When I had my thyroid out, it took the surgeon and the anistegeoligist to come up with something for me to take. It worked “ok” after the swelling went down before that the pain was unbearable. The swelling was due to my bruising problem, I bruise at the drop of the hat. I always have bruises and never know where they come from. The other thing that scares me is the numbness that goes along with surgery. When I had my thyroidectomy, it took just about a year before the feeling came back in my neck. Oh, and I can’t forget my fear of something else not working after surgery. I don’t do well with percentages, when I had my biopsy for my thyroid they told me “don’t worry, only 5% of these ever come back anything.” It came back follicular thyroid cancer. Then the doctor told me only 1-3% of people that have a thyroidectomy have their parathyroid quit working. See, I am not very good with percentages.
The past few days I have been looking for information on hysterectomies and now I am more confused than I was when I started. I have found a few good patient friendly pages. One is a personal blog called “ One Girl, No Uterus ” and Hyster Sisters, which is an online group. Let me tell you, it was much easier finding a surgeon for my thyroid. With hysterectomies there are so many options, it is starting to make my head spin. Laparoscopic (LSH), TLH, Laparoscopic-assisted (LAVH) and Total Abdominal (traditional). And those don’t even cover the “re-construction” part.
If anyone has any good links or information please post them here or if you would rather Email Me. I have a second opinion lined up and I hope that I will be able to put this off until this summer. When school is out and I will not have to drive anywhere.
I have posted before that every time that I go to the doctor, I get a new diagnosis. Well, earlier this week I went to the doctor to see about my fibroid issue. I was hoping that I would qualify for a fairly new procedure for fibroids called “Doppler Guided Uterine Artery Occlusion” I included an article about it from the Oxford Journals. Anyway, the doctor told me “I have good news and bad news,” that is never good. The good news was that my fibroids had not grown any in the past two years. The bad news was that I need to have a hysterectomy and re-constructive surgery. He said besides the fibroids and the cysts, I have Uterine Prolapse. And to think, I was worried about my boobs or my bum falling later in life. Years ago, I worked with a woman that had this and had a hysterectomy. But, she is the only person that I have ever known with it. It seems like that she was in her late 30’s? I am really starting to hate going to the doctor.
The “hysterectomy” itself doesn’t bother me as much as the surgery does. I don’t do pain well and there are not many pain killers that I can take either. When I had my thyroid out, it took the surgeon and the anistegeoligist to come up with something for me to take. It worked “ok” after the swelling went down before that the pain was unbearable. The swelling was due to my bruising problem, I bruise at the drop of the hat. I always have bruises and never know where they come from. The other thing that scares me is the numbness that goes along with surgery. When I had my thyroidectomy, it took just about a year before the feeling came back in my neck. Oh, and I can’t forget my fear of something else not working after surgery. I don’t do well with percentages, when I had my biopsy for my thyroid they told me “don’t worry, only 5% of these ever come back anything.” It came back follicular thyroid cancer. Then the doctor told me only 1-3% of people that have a thyroidectomy have their parathyroid quit working. See, I am not very good with percentages.
The past few days I have been looking for information on hysterectomies and now I am more confused than I was when I started. I have found a few good patient friendly pages. One is a personal blog called “ One Girl, No Uterus ” and Hyster Sisters, which is an online group. Let me tell you, it was much easier finding a surgeon for my thyroid. With hysterectomies there are so many options, it is starting to make my head spin. Laparoscopic (LSH), TLH, Laparoscopic-assisted (LAVH) and Total Abdominal (traditional). And those don’t even cover the “re-construction” part.
If anyone has any good links or information please post them here or if you would rather Email Me. I have a second opinion lined up and I hope that I will be able to put this off until this summer. When school is out and I will not have to drive anywhere.