I had labs 2 weeks ago, but am just now getting around to doing a blog entry.
My kidney labs are fine; Creatinine 1.2, BUN 23, and GFR >60. My blood counts are normal (for me, that is; I have Thallasemia Minor, a form of anemia)-my Hemoglobin is 12.9. My Prograf level is 8.6, which is within the range they want.
As for the BK virus labs, they are puzzling. BK is still detectable in my urine (as expected), and it’s once again detectable in my blood (last month it wasn’t). The puzzle is that the number of viral copies in my urine decreased from 226k last month to 196k this month, yet it went from no copies last month in the blood to 800 copies this month. BK usually appears first in the urine and then the blood. I don’t know why it decreased in the urine yet increased in the blood. Not a big deal; I’ll just have to wait to see what it does next month.
My CellCept is still on hold due to the BK, but the plan is to resume it once the BK is once again dormant.
I’ve been having problems over the winter with pressure ulcers on my foot. For those not familiar, I have a hereditary neuropathy which causes degeneration of the nerves in the arms and legs, leading to muscle shrinkage. I wear orthotics that give my legs support and allow me to walk normally without holding on to anything. When you see me walk, you would probably not be able to notice this, unless I’m not wearing them. I don’t let it stop me, nor do I think about it. It is what it is, and life goes on.
I had a fracture on the outside of my left foot years ago, and the bone healed with a bone callous protruding out the side (it looks like a bump); I have a thick skin callous in the area that rubs against the orthotic, and in December, I developed a pressure ulcer there. I’ve been going to the podiatrist every 2-3 weeks, and had a visit last Friday. After multiple visits to shave the skin callous, and 2 visits to the Orthotic tech and Orthotist, I have my Orthotics adjusted to a comfortable configuration, and I don’t have to go back to the Podiatrist until needed in the future.
Now that my Orthotics are fixed, I have started walking at lunch time. I’m hoping to get the “winter pounds” off, and get back into better shape.
My sister is doing better, but has been through a lot. She is coming up on her 1st anniversary of getting her kidney (April 30), but has had problems afterwards. Her kidney is working well, but she’s had diarrhea to the point of becoming malnourished. After the “million dollar workup”, she was found to have gall stones and sludge in her bile duct. They did an ERCP (a scope inserted down past the stomach and into the bile duct of the gall bladder), and removed the stones and sucked out the “sludge”. Unfortunately, it didn’t help her appetite, and she worsened. She ended up in the hospital last week for 3 days with dehydration, they changed her meds around, and she now feels betterher appetite is picking up. They probably will eventually take the gall bladder out, but with her nutritional status, it’s too dangerous now, as she wouldn’t heal properly.
For those who post comments, keep them coming. I’m also a little late approving them, but I did just approve those that were pending.