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Cute As A Button

Posted Nov 02 2009 8:53pm
bard

The BARD button has been a part of Logan’s life for over three years now. It is very much a love hate relationship, much like cerebral palsy. I love and have learned to appreciate that he is able to get all necessary nutrients and medicines he needs to thrive. On the flip side, I hate that it is mostly responsible for taking all interest away from Logan wanting to eat or drink anything orally. I won’t place all the blame on his tube as I’m sure his dysphagia has a lot to do with it as well.

Oh, and lets not forget about the pain and discomfort it has brought over the years. Can you even imagine having that ripped out of your stomach and having another forced in every time it goes faulty? It breaks my heart each and every time he has to undergo that torment. There is no telling how much longer this feeding tube will be a part of Logan and our daily routine that is constantly under going revisions.

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