CF Week: Day 2 (aka 'Cystic Fibrosis Through the Eyes of a 7 Year Old)
Posted May 18 2010 3:40am
First of all, thank you for the comments I've received so far about yesterday's post, both on Facebook and here on Blogger. I'm glad that my writing had an impact on you, and we are very grateful for your prayers, and I hope that through my writing, some of you (or all of you!) will be moved to make a donation to the CF Trust, or if you're in America, then to the CF Foundation. If you do, then feel free to let me know, because that would be great!
And now, onto Day 2 of my CF Week posts ...
Cystic Fibrosis Through the Eyes of a 7 Year Old
I was thinking of what to do for the rest of the week, and the idea of you hearing the words right from 'the horse's mouth' as they say, instead of through the eyes of a parent did occur to me. So I did think about Seren doing a vlog (that's not a typo, I think it means a video blog!), but I wasn't sure what I thought about it, whether it was right or appropriate.
But on the way home from school yesterday, after stopping in to talk to the kids' headteacher about doing a Big Cake Bake at the school (she and the deputy head LOVED the idea, and want to run their own Big Cake Bake after half term, to coincide with a day spent studying disabilities and being different), when we were walking home, Seren was saying that she'd love to do a talk about CF to the school, to tell them what it's really like to have CF.
She stood up in front of the school in assembly on Friday last week, to tell them about being a member of the school's Eco Team, and she really enjoyed the experience, and so I think that was what gave her the idea of wanting to educate people about CF too, because sometimes she gets really frustrated that people just keep saying CF must be fun to have, because she is allowed to eat as much chocolate and 'naughty' foods as she likes.
So I took the hint and asked her whether she'd like to do a vlog interview for CF Week on my blog, to tell people about what CF means to her. And she loved the idea!
So after Brownies last night, I interviewed Seren, and she really enjoyed it. She loved watching herself back afterwards too, and both she and Adrian were happy for me to post the interview here on my blog ...
And now, onto Day 2 of my CF Week posts ...
Cystic Fibrosis Through the Eyes of a 7 Year Old
I was thinking of what to do for the rest of the week, and the idea of you hearing the words right from 'the horse's mouth' as they say, instead of through the eyes of a parent did occur to me. So I did think about Seren doing a vlog (that's not a typo, I think it means a video blog!), but I wasn't sure what I thought about it, whether it was right or appropriate.
But on the way home from school yesterday, after stopping in to talk to the kids' headteacher about doing a Big Cake Bake at the school (she and the deputy head LOVED the idea, and want to run their own Big Cake Bake after half term, to coincide with a day spent studying disabilities and being different), when we were walking home, Seren was saying that she'd love to do a talk about CF to the school, to tell them what it's really like to have CF.
She stood up in front of the school in assembly on Friday last week, to tell them about being a member of the school's Eco Team, and she really enjoyed the experience, and so I think that was what gave her the idea of wanting to educate people about CF too, because sometimes she gets really frustrated that people just keep saying CF must be fun to have, because she is allowed to eat as much chocolate and 'naughty' foods as she likes.
So I took the hint and asked her whether she'd like to do a vlog interview for CF Week on my blog, to tell people about what CF means to her. And she loved the idea!
So after Brownies last night, I interviewed Seren, and she really enjoyed it. She loved watching herself back afterwards too, and both she and Adrian were happy for me to post the interview here on my blog ...
So ... what did you think?
Did it make you want to donate?
Just on the off chance that it did ...
Here's the link to the CF Trust's donation page
Or if you prefer, you could sponsor my mad calendar friends to throw themselves out of an airplane this coming weekend!