Yetunde Felix-Ukwu (a warrior on facebook) was one of the first people to undergo the half-match bone marrow transplant. Read more about the research study and her amazing results here , and contact Johns Hopkins for more information. This is a first step toward finding a cure for sickle cell for those that do not have active full HLA matches. It’s definitely hopeful.
Adventrx has moved to phase III on it’s sickle cell drug ANX-188. This med works during crisis to reduce clumping. Read more about it HERE .
Gamida Cell Ltd., a world leader in stem cell population expansion technologies and stem cell therapy products for transplantation and regenerative medicine, announced today that the first patient, enrolled in its pilot study of NiCord(R) as an investigational treatment for sickle cell disease (SCD), has been transplanted at Duke University in North Carolina. Another HUGE stride in research. I’m almost doing a happy dance over here.
A study recently published showed that children with sickle cell disease are vulnerable to cerebral infarcts from ‘silent strokes’ in childhood. This is the finalized publication from the research news that broke about it last year. Read more HERE .
Another published study by Drexel University broke down the etiology of what happens in the cell during a vaso-occlusive crisis. If you’re interested, the link is here . All I know is that it effing hurts!