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August 3, 2009 - Day 105

Posted Aug 07 2009 12:18pm
I woke up this morning with a throat so raw and sore that I couldn't even swallow my pills, because even water caused it to burn.
We called Dr. Schwarzberg and he was able to work me in this afternoon just for a general checkup and some blood work to be sure that nothing screwy has happened to my platelets and white blood count.
It looks like I may have picked up some kind of infection that we are now treating with antibiotics. Hopefully, this new medication will take care of the problem quickly and I won't have to take another pill for too long.
Where I may have picked it up I have no idea, although I did go out to Costco and Best Buy a few days ago.
For those of you who may have friends, relatives or acquaintances who are involved with a drug regimen that suppresses their immune system, please be careful when you visit them.
If you bring the slightest bug into their environment, their chances of contracting it go up exponentially and the last thing they need is another battle to fight.
The problem is that with a compromised immune system, even the slightest germ can quickly get out of control and result in a more serious problem like pneumonia.
Wash your hands, wash your hands, wash your hands and it will help reduce the spread of flus and colds and such.
No friendly kissing either, keep your saliva to yourself.
Now that we have the swine flu (as well as the standard varieties) running rampant through the world, the stakes have been raised for patients. Think before you visit, a phone call can be just as good as a face to face.
Today I am paying for being fast and loose with my diet and not watching the sodium content of the foods that I have been shoving down my pie hole.
I am carting around a couple of tree stumps that extend down from my waist due to that nasty old complication known as edema.
Just another day at the office.
I will be very careful about what I eat over the next couple of days, take my diuretics and with any luck, it should resolve itself without any other treatment being required.
Today was Dexamethasone loading day and I am astounded about how much better I feel compared to the last few days that I have documented here.
I am much more aware and have a feeling of well being that was a distant memory during the past few dreadful days.
I know that this will not last long, but wow, it feels good right now.
The end of the week will come quickly and it will be back to the status quo of the steroid crash, only to be relieved the following Monday again by the steroids.
The roller coaster climbs the hill and then it screams down the other side again.
Some days, I think that I have a good handle on the ups and downs, but I really don't.
You never get used to them, whether you know they are coming or not.
On the bright side, one of my brothers is coming to visit for a couple of days and it will be good to have him around for a sounding board even though his time is quite limited.
The days seem bright right now and they will remain so for a short period, so I am going to take advantage of every minute of them that I can. At least that is the plan.
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