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5 Reasons I’m Not Grateful I Have Churg Strauss Syndrome: Part 5 Medicine

Posted Dec 11 2009 12:00am

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I’ve started writing this last post in this series at six in the morning, and I’ve already taken two of the five medications that I take to control the things that effect my body everyday, and to be honest I have a ” Love/Hate ” relationship with them….

I just love hating them all!

Before I go any further, I want to point out that not all of these medicines are for the control of CSS, but if you remember the picture that went along with the newspaper article about me this past July, Rare Disease Hits Middletown Man ”, then you might also remember the following picture…


That picture shows just three of the five medications I take now in order to keep myself going everyday and keep my condition stable.

Now for those of you out there reading my blog, who have no health issues but who may be responsible for the care of another who does have a health issue and for those, who like myself need to take medications everyday to have some semblance of a normal life, and even for the curious who just happen upon this blog and this particular post, you have to understand that just because someone like myself takes medications in order to control and stabilize their condition, doesn’t mean that they are okay with it.

I can tell you that being dependant on these medications has decidedly changed the way I live, and the way I have to do things in general.

I had to changes things as far as my daily morning routine, so that I would be able  to take the medications that I need everyday, before I walk out the door to head to my place of business, but honestly the worst thing for me and why I made this the last thing that I would talk about is just the plain simple fact that whether we are talking about myself or someone else, the thing of it all is this…we were just like you..healthy and ( at the very least ) in decent, overall health.

But now everyday, I and others like myself have to take several different medications a day in order to live…but we are the lucky ones.

There are people with conditions which put them in much more dire straits, who have to do much more than just take pills in order to control their condition, there are people who have to have regular intravenous treatments in order to control their condition, and I want to point out that with my particular condition, Churg Strauss Syndrome, there are different stages to it, which I will talk about in future posts.

In ending this five part post, I just want everyone to understand that when you wake up one day perfectly healthy and the next your playing on a whole new battle field, your first reaction to the situation is this…you ask yourself ” why did this happen to me? ” and then you ask yourself ” what happens now ? ”

I can’t really answer the first question for you, but as far as the second…what happens now is up to you…you have to decide how you want to live your life from this day forward, and I hope that I might be able ( in my own small way ) to be able to lend you a word or two of encouragement, maybe a bit of information that you find useful, or just maybe inspire you to not let the disease win the battle.

Lew

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