2014 Supplement & Vitamin Review – Natural, OTC Neutraceuticals & Products Suggested For Bladder Health
Posted Jan 21 2014 6:33pm
In 2011, the leading urology association in the world, the American Urological Association (auanet.org) , published their first Guidelines for the Diagnosis and Treatment of IC/BPS. Using a six step treatment protocol, they encouraged patients to start with Step One (self-help strategies, diet modification and OTC supplements) BEFORE proceeding to Step Two, Three, Four and so forth. Why? Self-help strategies have few side effects, are far more affordable and are well known to improve bladder symptoms and quality of life. In the IC and pelvic pain courses at the 2013 national AUA conference, several supplements were recommended to physicians to discuss and/or share with their patients.
Prelief is the most widely recognized and popular supplement in IC circles. Developed by AkPharma, Inc. more than twenty years ago, this simple calcium supplement (calcium glycerophosphate) has helped thousands of patients eat a more balanced diet due to its acid reducing properties. Prelief is not suggested for patients who are prone to calcium based kidney stones. Learn more!
Developed by IC researcher Theoharis Theoharides MD (Tufts), CystoProtek offers two methods of action. Quercetin provides a nice anti-oxidant, antihistaminic effect while chondroitin sulfate and sodium hyaluronate are believed to provide a bladder coating effect. CystoProtek has dominated supplement sales but recently faced controversy when Amazon banned its sale because of the presence of shark fin as the source for chondroitin. Learn more!
CystaQ & CystaMD
Developed by Farr Laboratories, CystaQ contains a proprietary formula of quercetin and selected herbs. CystaQ has a faithful following, particularly for patients who are allergic to some of the ingredients found in CystoProtek. CystaMD contains the same ingredients as CystaQ with the addition of calcium glycerophosphate. Farr Laboratories also carries a line of supplements specifically for men, including ProstaQ and Q-Urol. Learn more!
Desert Harvest Aloe
Aloe is well known to be soothing to minor wounds and it is for this reason that Desert Harvest Aloe has a very faithful following. Some have found it quite soothing for a tender bladder or urethra. Desert Harvest has been active in the IC community for twenty years and has created a compelling line of aloe supplements, including: B Complex without B6 with Aloe, Calcium & Vitamin D with Aloe, Buffered Vitamin C with Aloe, Glucosamine/Chondroitin with Aloe, Quercetin with Aloe. Learn more!
Three additional supplements were released in 2013 and receive solid reviews from patients.
The Low Acid MultiVitamin and Mineral complex was created for people who cannot tolerate vitamins due to acid sensitivity by using a less acidic form of vitamin c (calcium ascorbate) and calcium glycerophosphate. In the first release launched in Spring 2013, 1200 bottles were sold by the ICN with overall very good reviews. Some severe IC patients found it too too irritating for their tender bladders. On the other hand, mild to moderate patients appeared to tolerate it very well. This product is currently SOLD OUT but should be back available for purchase in mid to late February! Sign up on our website to be notified when it comes back in stock . MultiRight is a joint collaboration between the IC Network and Farr Laboratories. Learn more!
Developed by Dr. Geo Espinosa, a urologist at NYU, Cysto Renew combines some of the most respected ingredients (i.e. quercetin, chondroitin) with compelling amino acids and herbs (l-arginine, l-citrulline, rhodiola rosea, etc.) designed to help calm the bladder and support healthy functioning of the urinary tract. Cysto Renew is the newest supplement on the market and has only been available since Fall 2013. It is receiving mostly favorable reviews at the onset, with some patients preferring it over CystoProtek. It is manufactured by Douglas Laboratories. Learn more!
FibroProtek is a patent-protected, all natural oral dietary supplement designed to fight fatigue and help the body deal with muscle pain. It is the latest supplement developed by Dr. Theoharis Theoharides as part of the Algonot line of supplements. He suggests that it be used in conjunction with CystoProtek to increase energy and reduce muscle pain. It contains CoQ10, Carnitine, Luteolin, Quercetin & White Willow Extract. Learn more!
Why does the ICN offer supplements?
The ICN only sold educational materials (books, videos, etc.) for years before it came to our attention that some doctors were promoting the use of a medical device (and surgery) as a first line therapy for IC. In fact, some patients weren’t even told about oral medications in favor of the more profitable surgical techniques. We were outraged. We believed that patients should be educated about the many treatment options available, including traditional and alternative therapies. Thankfully, the AUA not only agreed with our approach but implemented the same philosophy in their treatment guidelines.
How does the ICN select supplements?
We look first at the company selling the product and their focus on quality. We ask why the product was developed. Many have been created by well known IC researchers and clinicians such as Dr. Theoharides (CystoProtek, Fibroprotek) and Dr. Espinosa (Cysto Renew). Are the ingredients known to help bladder symptoms? Is the pricing fair and affordable? We believe that the supplements that we carry today are the best on the market.
Do all doctors recommend the use of supplements?
With the AUA’s recommendation of neutraceuticals in their guidelines, far more physicians are comfortable suggesting OTC products. Every CME class we attended at the 2013 AUA Annual meeting featured comprehensive discussions of available OTC supplements. Unfortunately, doctors who don’t attend the conferences or have not read the guidelines simply may not know that they exist. If your doctor is unaware of the AUA guidelines, you can print out a copy from our website which shares their position on supplement use.
Which one should you select?
Given the fact that IC patients often have very unique food sensitivities, begin first by reviewing the supplement ingredients on our website. If you are sensitive to any of the ingredients, then move to a different supplement. Patients with shellfish allergies, for example, cannot take CystoProtek. Ultimately, though, it’s just trial and error. What works for one patient may or may not work for another.
Are samples available?
No. Most companies suspended their sampling programs years ago. The only sample available is currently from Farr Laboratories and is part of their Introductory Offer.
Strategy for sensitive patients
People often have different tolerances to different ingredients. We suggest starting with one pill or capsule to determine if you tolerate it well. You can then try one pill a day for a week and, again, ask yourself “Do I feel good taking this supplement?” If yes, you can slowly increase to the manufacturers recommended dose. Please note, however, that some patients prefer taking smaller doses.
In general, these supplements have very few side effects. Some patients may have pre-existing allergies or sensitivity to any of the ingredients and should avoid any products which contain them. Please carefully review the ingredients on our website to make your selection. Some patients report loose bowels or diarrhea with products containing olive fruit oil. The low acid vitamin might be too strong for patients with very sensitive, injured bladders. If you suffer any uncomfortable reactions, stop the supplement immediately. You may want to consider a different brand. Unfortunately, we simply can’t predict what will work for you! If you have any doubts about trying any supplement, please talk with your doctor first!
Supplements should not be exposed to heat, thus shipping in the hot summer time months is very difficult. Order enough in the Spring to avoid shipping in hot weather.