Written by Sickle Cell Warrior on 26 November 2012
While Lakiea and I were at the Martin Center Banquet last September, we brainstormed a REALLY big idea. What if we could bring members of the sickle cell community together for an event, a weekend in which we are learning, educating, playing with, supporting, and sharing with each other? What if we could take the online experience offline and meet the people that we have been talking to for years in person? What if?
Well after weeks of brainstorming, planning, and feedback from the members on the Sickle Cell Warriors Facebook page, we finally have enough details to share it with all of you. Please visit the we have created on Facebook for more information. We also have a separate video page on .
This is our dream, and I hope that you can join us. We plan to make this an epic adventure, a wonderful event that no one will forget. I’ve put some details here, and if you have any questions, suggestions, or concerns; don’t hesitate to reach out to us. Hope to see you there!
This cruise was designed to allow members of the sickle cell community (SCD Warriors, Soldiers, friends, family, caregivers, healthcare workers, advocates and allies) to gather in one place to get to know each other in a more direct manner. Our community is large. There are over 90,000 people in America living with sickle cell disease, with hundreds of thousands more dedicated to standing on the front lines with those affected. We communicate, collaborate and strategize continuously for the betterment of our community and yet many of us have never actually met face-to-face. This is our opportunity to change that. Think of it as summer camp for the grown and fabulous!
Everyone! It is our hope that this will be the first of a yearly sickle cell family reunion thus the entire family is invited. Everyone is encouraged to invite anyone whose life has been touched by sickle cell in some way. This includes friends, family, coworkers, caregivers, healthcare workers, etc. Additionally, this cruise is not limited to any particular member of the family of sickle syndromes, but is open to trait carriers, SS, SC, S-beta thalassemia, and all variations thereof.
When and Where?
After much consideration and several discussions with many of the 6000+ members of the Sickle Cell Warriors, Inc. facebook group, we have reserved a three-night cruise aboard Carnival Imagination sailing from Miami, FL (July 12th – July 15th).
Depart – Miami, FL – 4pm – July 12, 2013 (Friday)
Arrive – Nassau, the Bahamas – 10am – July 13, 2013 (Saturday)
Depart – Nassau, the Bahamas – 7am –July 14, 2013 (Sunday)
Full day at sea – Advocacy Roundtable/ Collaboration Compact – July 14th, 2013 (Sunday)
Arrive – Miami, FL – 8am – July 15, 2013 (Monday)