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Francine R. Patient Expert

`, Massachusetts
Volunteer, singer, student, activist for my kids. Mom to 3 kids - one with Down Syndrome, one with Food Allergies, one with Dyslexia and Anxiety. My husband has Crone's, and I had skin cancer. Otherwise, just a rolickin' good time! Come visit my blog, "2 Pirates and a Princess."
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Pay It Forward by Francine R. Patient Expert Posted in: Blog Posts in Down Syndrome Dear friends, When my daughter Sofia was born with Down syndrome, our family became part of a very special community. Our connections may be in person, or just over the ... Read on »
Been kinda busy! by Francine R. Patient Expert Posted in: Blog Posts in Down Syndrome Well, November was a whirlwind, prepping for (and then recovering from) Micah's Bar Mitzvah on November 15. He totally rocked it. My cheeks hurt from smiling so much. It was ... Read on »
Ending a month of Down Syndrome Awareness posts by Francine R. Patient Expert Posted in: Blog Posts in Down Syndrome There are a bunch of common physical characteristics in people with Down syndrome. Some of the most common are - those beautiful slanted eyes - a flat nasal bridge - a ... Read on »
Oct. 24 - 27 by Francine R. Patient Expert Posted in: Blog Posts in Down Syndrome This is a double-purpose post. Not only is it today's entry for Down Syndrome Awareness Month, but it's a Happy Birthday wish to my beloved grandmother, Doris, who would h ... Read on »
31 for 21: October 23 - Don't Test Me! by Francine R. Patient Expert Posted in: Blog Posts in Down Syndrome I had read about this before Sofia was born, but we are seeing it in action right now. Children with Down syndrome are tested. Often. Continuously. By lots of people ... Read on »
31 for 21: Soul Sisters (October 22) by Francine R. Patient Expert Posted in: Blog Posts in Down Syndrome This one is about the people - mostly moms, but a few dads and grandparents, too - I am privileged to call Soul Sisters. I would never have met these people without Sofia ... Read on »
Oct. 20 - Princess? by Francine R. Patient Expert Posted in: Blog Posts in Down Syndrome First, an article, originally found here: http://www.huffingtonpost.com/suzie-skougard/a-disney-princess-with-down-syndrome_b_6006964.html ... Read on »
18-20 DS Awareness Month by Francine R. Patient Expert Posted in: Blog Posts in Down Syndrome  Sofia found a friend to keep her amused during Sabrina's Bat Mitzvah. Too tired for a lengthy 31 for 21 post today. Sofia had a lot of fun at the Bat Mitzvah thi ... Read on »
31 for 21: October 16 & 17 by Francine R. Patient Expert Posted in: Blog Posts in Down Syndrome Tonight was Simchat Torah, when we celebrate by dancing with the Torah. This is truly Sofia's favorite holiday. She loves to dance. She loves to move her body. She loves t ... Read on »
31 for 21: Oct. 10 - 14 by Francine R. Patient Expert Posted in: Blog Posts in Down Syndrome Sofia doing math homework (VIDEO) Tomorrow is the Buddy Walk! Such a fun event. It's not too late to join us, too! However, I'm completely tapped out of ideas tonight, ... Read on »
October 9: Independance by Francine R. Patient Expert Posted in: Blog Posts in Down Syndrome I’ve always looked at the developmental delays that come with the extra chromosome as sort of a motherhood-bonus: my baby, my last child, my little girl, stays a baby longer ... Read on »
Down Syndrome Awareness Month (5-8) by Francine R. Patient Expert Posted in: Blog Posts in Down Syndrome Yesterday afternoon, while all the grownups and teens napped, Sofia and her cousin Lilie spent several hours indulging in raucous imaginative play. Tea Parties, babies, cl ... Read on »
Down Syndrome Awareness Month by Francine R. Patient Expert Posted in: Blog Posts in Down Syndrome October is Down Syndrome Awareness Month, and we in the blog-sphere try to do "31 for 21". I've been posting on Facebook, but I'll try to put them here, also. So, to catch u ... Read on »
October already! by Francine R. Patient Expert Posted in: Blog Posts in Down Syndrome Really, I have not posted since July?!!! Ok, quick summer update - Sofia had a blast during her 5 weeks at Camp Arrowhead, the special needs daycamp in Natick. Every c ... Read on »
DS Convention, and Inspiration Porn by Francine R. Patient Expert Posted in: Blog Posts in Down Syndrome Sofia and I attended the National Down Syndrome Congress convention this past weekend, in Indianapolis. It was a nice to get away with my beautiful daughter (even though she ... Read on »
To Break, To Train, or To Guide by Francine R. Patient Expert Posted in: Blog Posts in Down Syndrome I started this reflection a few weeks ago, and finally have some time to get back to it... My daughter is strong willed. Very strong willed. She has Down syndrome, and pe ... Read on »
Micah's "Save the Date" card by Francine R. Patient Expert Posted in: Blog Posts in Down Syndrome Micah Save the DateView the entire of cards. Read on »
Pollen Tsunami by Francine R. Patient Expert Posted in: Blog Posts in Down Syndrome Yes, it's finally Spring in the Northeast, which means No One Can Breathe! Between myself, Micah and Sofia, we've gone through so much Benadryl, Zyrtec and Claritin, it's ... Read on »
First do homework, then climb the walls by Francine R. Patient Expert Posted in: Blog Posts in Down Syndrome It's one of those "mommy" phrases you never expect to hear yourself saying. And yet you say it. And it works! Sofia gets homework packets from the sub-sep teacher each we ... Read on »