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forevertrust

Mount Pleasant, Michigan
Blog: http://ourtransplantjourney.blogspot.com
My daughter was born with a rare metabolic disorder called Maple Syrup Urine Disease.  She is currently on the waiting list for a liver transplant, which she will receive at Children's Hospital of Pittsburgh when the time comes.  I blog about our experiences, hopes and fears about the... Full Bio
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Just can't catch a break...

After getting through last week, with a UTI, high levels, and a trip to the ER, I suspect she now has the flu.  Yesterday she started complaining...
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deja vu

Back in March , Anna had a a week of high levels caused by a urinary tract infection.  We are going through that again now.  On Monday...
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ting tang walla walla bing bang

(I want to start this post by saying that I have absolutely no problem with alternative or natural healing.  I believe that in the right...
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Wordless Wednesday - A Proud Mom Moment

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struggling

I've been debating whether or not to post this or not. I'd rather keep this blog as positive as I can, even when we are going through medical...
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rickisjourney and forevertrust are now friends. May 08 2010
KMunoz28 and forevertrust are now friends. May 08 2010
forevertrust updated their profile. Apr 30 2010
rickisjourney wrote on forevertrust's Whiteboard. Apr 30 2010
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Apr 30 2010 by rickisjourney
Awesome Blog, MOM!! I will be sharing your story on my blog for sure!! Many prayers and good vibes  coming your way.
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