Health knowledge made personal

Flower Spy

catonsville, Maryland
I am a surviver of a rare disease called Conn's Disease, or primary hyperaldosteronism. I had it for at least 8 years according to my endocrinologist and surgeon. Last year I had an adrenalectomy to remove the gland and tumor, which cured and removed the horrible side effects that go with this... Full Bio
› Share page:

Posts

Sort by: Most recent | Name
N.A.D.F. needs stories about adrenal crisis for Lobbying effort for better EMT training by Flower Spy Posted in: Blog Posts in General Medicine As a member of the National Adrenal Disease Foundation (NADF), I receive emails each week regarding updates and issues for people suffering from adrenal diseases (Cushings, ... Read on »
We need more research and media attention for Conn's by Flower Spy Posted in: Blog Posts in General Medicine Dr. Jerome Conn If you have been following this blog, you know I have struggled just like you with the debilitating disease called Hyperaldosteronism, also known ... Read on »
Living better with supplements by Flower Spy Posted in: Blog Posts in General Medicine It's hard to believe it's been almost five years since my adrenalectomy! I am continuing to learn how to take better care of myself, which seems easier in theory than ... Read on »
June 2013-More post-Conn's Updates by Flower Spy Posted in: Blog Posts in General Medicine It's been way too long since I last updated this important site. Please don't take my absence as a sign I have moved on after surgery and forgotten about all of you~ ... Read on »
Three and a half year follow up by Flower Spy Posted in: Blog Posts in General Medicine My apologies for taking so long to write. After moving out west 2 years ago, my time has been divided between writing, two part time jobs, my very first dog and a new, lovin ... Read on »
A change in N.A.D.F. Conn's description by Flower Spy Posted in: Blog Posts in General Medicine When I was at my sickest, I was desperate for whatever information I could find. I went on every site that had the word Hyperaldosteronism in it. What I found was a lot of c ... Read on »
Hypoglycemia by Flower Spy Posted in: Blog Posts in General Medicine Aside from Conn's, hypoglycemia is a condition I was diagnosed with back in Baltimore several years ago when I was dealing with Conn's. The doctor who told me I had it didn' ... Read on »
Almost 3 years after surgery.... by Flower Spy Posted in: Blog Posts in General Medicine ...and yes, there are still positive changes. However, this past year has been quite challenging health-wise. After moving to the southwest from the east coast, instead of c ... Read on »
Conn's story in Harmony Magazine, January 2011 issue by Flower Spy Posted in: Blog Posts in General Medicine A new lifestyle magazine called, Harmony, is on the news stands in high end health food stores such as Whole Foods and Sunflower Market, as well as Wal Mart. Harmony, geared ... Read on »
Two years after Surgery by Flower Spy Posted in: Blog Posts in General Medicine It's almost two years since the adrenalectomy. I've received numerous inquiries about how I feel and handle stress, so I am dedicating this post to those questions. I'll ... Read on »
WBAL TV-11 Baltimore television interview: Conn's Disease by Flower Spy Posted in: Blog Posts in General Medicine Last week, WBAL TV-11 in Baltimore, MD, did a segment for their Woman's Doctor Program featuring my experience with Conn's Disease. I hope more Conn's survivors will come fo ... Read on »
Mystery Illness from the New York Times Magazine, 9.12.10 by Flower Spy Posted in: Blog Posts in General Medicine There was an article in the NYT Magazine last Sunday that caught my attention. Entitled " The Heat of the Night ", it dealt with the journey of a man who suffered from a str ... Read on »
The way things are now by Flower Spy Posted in: Blog Posts in General Medicine It's been well over a year since the angry adenoma that wreaked havoc over my system was destroyed by my evil-slaying surgical hero, Dr. Armando Sardi . So much of my life h ... Read on »
Some post-surgical questions and observations~ by Flower Spy Posted in: Blog Posts in General Medicine Although I am clinically "cured" of Conn's syndrome, I still have so many questions. I'm sure a lot of you that have taken this unfortunate journey do too. It would be easy ... Read on »
Adrenal Fatigue from Conn's Disease by Flower Spy 1 Comment Posted in: Blog Posts in Chronic Fatigue Syndrome Originally posted: June 20, 2008 (see hyperaldosteronism blog for more postings...) After all the blood work I've done, I'm starting to feel like a vampire victim. I have ... Read on »
Tips for living with Hyperaldosteronsim or Conn's Disease by Flower Spy 1 Comment Posted in: Blog Posts in Chronic Fatigue Syndrome The following tips may not be for everyone, but they have greatly enhanced my daily routine while living with primary hyperaldosteronism, also known as Conn's Disease. ... Read on »
What is Hyperaldosteronism? by Flower Spy Posted in: Blog Posts in Chronic Fatigue Syndrome Aldosterone is being over produced in my left adrenal. I had no idea what it was until I was diagnosed with this disease back in July. Wanting to learn as much as I could ab ... Read on »
One year after the surgery by Flower Spy Posted in: Blog Posts in General Medicine March 16 marked my one year anniversary for surgery for Conn's (adrenalectomy). I tried to update my progress every few months, although I fell short of doing it quarterly ... Read on »
Ten months after surgery by Flower Spy Posted in: Blog Posts in General Medicine It's been ten months since my adrenalectomy. As I mentioned in my last post, things have radically improved, although that arch-enemy of mine, "fatigue", still rears its ugl ... Read on »
Eight months after surgery by Flower Spy Posted in: Blog Posts in General Medicine It's been eight months since my adrenalectomy. Many people in my NORD Rare Diseases support group have contacted me for status updates. I figured I'd post more here so other ... Read on »