SOOTHING SAVAGE FIBROMYALGIA & CHRONIC FATIGUE: DRUGS!
Posted Oct 21 2008 12:43am
I saw Dr ML&S this morning. I thought I was going to have a problem waking up early (I had to leave the house at 9:00, and I've been awakening at 11:00 or noon lately), but did not. I woke at 4:00. ...That would mean I got five hours of sleep.
I don't know what the hell that is about... Some nights my person seems to love sleep at least as much as it loves oxygen, but other times it wants out of it like a college kid wants out of the drunk tank as soon as he wakes up. (The three-inch thick foam-rubber mattress you're given to put on the concrete floor isn't comfortable once you've sobered up.)
First we discussed the results of my allergy test. I told him I immediately cut yeast out of my diet, and that what I had thought was IBS (irritable bowel syndrome) was actually my gut's response to its yeast allergy.
So I have no more IBS-like symptoms (which I won't discuss here -- eeeeeeww)! However, that's the only thing wrong with me that has been put right.
After that discussion, Dr ML&S asked me to rate my pain throughout the day. I told him that, since I take all my meds on time and on an exact schedule I make every morning, based on when I wake up, it's a 4.5/10 all day long.
He said "Then I guess we have a ways to go."
...On my way to see him, today, I hadn't even thought about increasing my OxyContin dose, but the doc doesn't seem like he'll be happy until my pain rates 0/0, if that's possible to attain.
When he asked me if I thought taking 10mg of Oxy every five hours instead of every six would further reduce my pain, I said yes. Thirty mg/day decreased it significantly (from 50/10 to within the scale), 40mg/day decreased the agony maybe two points more, and so now I hope my pain decreases even further.
...Perhaps I can get to a 2.5 or 2/10... If that happens, it may no longer hurt when I sit back in chairs!
He also asked me to tell him how my pain has been since I began seeing him.
"Well... You saved my life."
I explained that going from 50/10 to 4.5/10 was something so tremendous it hadn't even occurred to me that we should try to bring it down further (maybe I should work on this post so I don't re state that)... That he had improved my life (reduced my pain, etc) so much that I'm still in shock due to how much better I feel. (Which isn't to say every moment isn't agony...)
I know this seems like I'm simply blowing smoke up my doctor's ass, but I have no reason to: very few people know about this blog (PLEASE DONATE!), including him.
I'm simply grateful that this guy saved my life. The day before I saw him I was thinking up different ways I could kill myself. The very next day a smile crept on my face for the first time in forever.
...Dr ML&S also increased my Ritalin LA (long-acting), so now I'm taking 30mg to get me out of bed, and 20mg later in the day, about eight hours before I plan on going to sleep.
I think it could work out... And if it doesn't the good doc (I think that is the first time I've used that phrase without sarcasm) and I will fine-tune things when I see him in about a month.
...Hopefully all this is leading to me getting on some sort of sleep schedule... That's eluded me for a very very long time.