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How can I get someone's attention about edema? I've seen my rheumatologist and my family doc with MAJOR edema overall


Posted by pblott

I can lose as much as 18 pounds with diuresis.  Taking Lyrica, Cymbalta, Celebrex, Ultram, and Ambien.  Have lots of rheum s/s but no firm diagnosis yet.  Low grade temp, fatigue, joint and soft tissue pain, psoriatic spots that rage when other s/s flare up, edema that is HORRIBLE, but much worse in my left leg.  It's double the size of my other leg.  When I am full of fluid, I can't catch my breath or wear my clothes/shoes.  The edema gets better then worse, but never goes away.  The other s/s are most of the time.  I have a few good days a month, but most days are a struggle to get up in the mornings.  This has gone on for years and I am SO tired of it.  Have elevated CRP and ESR always.  I'm 37, a nurse and a mother and i want my life back.  So much of it has been wasted with this.  I'm so sick of seeing a new doc every 2 or 3 years, just trying to get some help.  Leaves them scratching their heads.  Please help.  Some say fibro, some say all kinds of other things. 
 
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