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Lung function. by Feeding problems Posted in: Blog Posts in Children's Health Well Sophie had her port flushed today and I'd asked her nurse if it would be possible to do a cheeky little lung function while we were there. ... Read on »
Clinic round up! by Feeding problems Posted in: Blog Posts in Children's Health Clinic went well to be fair. Sophie is in great health at the minute so wasn't expecting anything to be too out of the ordinary. Weight sitting stable at 17.8 ... Read on »
Parallel universe by Feeding problems Posted in: Blog Posts in Children's Health Frustration, fear. Tears tumble down my cheeks. Uncertainty and driven into a world of experiences that freeze you to the core. Suffocating and choking on stats and ri ... Read on »
A return of sorts. by Feeding problems Posted in: Blog Posts in Children's Health Well after taking a little over a year off from blogging I feel it's time to make a return of sorts. I say of sorts because life is hectic. I can't promise to a ... Read on »
A massive HELLO from us! by Feeding problems Posted in: Blog Posts in Children's Health So much to update. Full blog post coming soon.... X Read on »
MRSA Vs Vancomycin by Feeding problems Posted in: Blog Posts in Children's Health Very long overdue post, sorry! Well in my defence I have a reason why I have left it so long before writing this. Right lets zoom back to Sophie's 5 day admission for ne ... Read on »
2013...Nearly. by Feeding problems Posted in: Blog Posts in Children's Health Hello all, long time no speak! Apologies for that. Life as usual got in the way. Sophie is continuing to eat, it's still all very new and incredibly strange to g ... Read on »
Tube wean summary. by Feeding problems Posted in: Blog Posts in Children's Health I had huge hopes of posting daily blog updates during the whole of Sophie's inpatient tube wean, however lack of internet and signal put a stop to it. Frustrated does ... Read on »
Tube wean: Day 2 & 3 by Feeding problems Posted in: Blog Posts in Children's Health Sorry for the minor delay folks, Internet signal has been very challenging to say the least. It feels almost like we have been cut off from civilisation and I've never known ... Read on »
Day 1: Tube wean. by Feeding problems Posted in: Blog Posts in Children's Health Just a quick blog for update purposes and apologies as I'm doing it from my phone as it is the only way I can get any signal. Sophie has settled into hospital r ... Read on »
A new era? by Feeding problems Posted in: Blog Posts in Children's Health Next week Sophie is being admitted into hospital for nearly two weeks. A common occurrence in the CF world but this admission is nothing to do with CF. This is a ... Read on »
Evolution. by Feeding problems Posted in: Blog Posts in Children's Health \ All prepared and ready to give.  I actually forgot to get a picture of Sophie receiving her bolus meds but this is her having her t ... Read on »
The bitch is back.. by Feeding problems Posted in: Blog Posts in Children's Health And finally, meet Sophies new addition to her teddy collection. This is her sock monkey Sookie!!  Now this isn't just any soc ... Read on »
The sea is the key! by Feeding problems Posted in: Blog Posts in Children's Health Well hello there! Okay so very bad blogger and I apologise for our lack of updates. We are back though and in full blogger mode. So where have we been?? We've ... Read on »
MRSA eradication-What we did. by Feeding problems Posted in: Blog Posts in Children's Health I am moving along from birthday proceedings due to a huge amount of reader questions regarding Sophie's MRSA eradication treatment. Rather than answer everyone individual ... Read on »
Happy Birthday Sophie. by Feeding problems Posted in: Blog Posts in Children's Health Cannot believe my baby girl is 5 today! For a change Sophie wants to spend the weekend at Thomas land so that's where we are :) Obviously lots of pictures will f ... Read on »
Results. by Feeding problems Posted in: Blog Posts in Children's Health Sorry for the delay folks I've been at work all day! Third set of cultures are all NEGATIVE to MRSA! We will know in the coming months if we've managed to fully eradic ... Read on »
The bitch is going down. by Feeding problems Posted in: Blog Posts in Children's Health After our previous bomb shell that Sophie had cultured MRSA in her sputum it was time to take action. I didn't stay upset for long and gathered myself to go into ... Read on »
Meet the new bitch in town. by Feeding problems Posted in: Blog Posts in Children's Health We've had a bit of a bad week. Firstly Soph had CF clinic on Monday and all was looking great. Chest clear, sats 100% and she's even grown in height. We've decided collec ... Read on »