I have FSHD and my doctor reccommended swimming, either laps or water aerobics. You have to be very careful when doing any kind of exercise with FSHD because you can easily damage your muscles and they may never heal or be the same again, causing you major difficulties. I have been swimming laps for 20 minutes, twice a week for about 2 months now and I have noticed a small difference. My specific FSHD presented with foot-drop, and I have noticed that it is easier to walk now that I swim. I used to have to use a brace to walk without tripping and falling, but now I am able to walk without it. It is important to keep your muscles toned with FSHD to prevent premature deterioration. Swimming is really the safest and most effective way to do this. It is of course difficult if you are not used to it, but you eventually build up your stamina and feel much better.
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