Health knowledge made personal
I'm a mother of two who recently lost our first child, Charlotte, to a rare chromosomal issue that resulted in various health issues and complications. She was 3 years and eight months old. With her we dealt with developmental issues as well as heart, lung, kidney, and feeding issues. She used oxygen and a feeding tube for most of her life.
Ella, my second child, is not affected by this disease but may be a carrier. She was born in October 2008, four months before Charlotte passed away.
We are currently dealing with grief and learning how to live without Charlotte, as well as going through issues relating to how to continue to grow our family. We have a high chance of recurrance with our chromosomal issues, and have the options of trying for natural conception, doing IVF with PGD where only healthy embyos would be implanted, or adoption. We are currently looking into IVF.