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Erica Verrillo

California 01096
Erica F. Verrillo was completing her doctorate in Speech Communication before falling ill with CFS in 1992. She is the co-author, with Lauren Gellman, of Chronic Fatigue Syndrome: A Treatment Guide, 1st Edition (St. Martin's). She is also the author of three middle reader fantasies, Elissa's... Full Bio
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IOM Posts Agenda for May 5 Meeting, Raises Eyebrows by Erica Verrillo Posted in: Blog Posts in Chronic Fatigue Syndrome Very illogical... The IOM has posted its agenda for the public meeting to be held on May 5, 2014. (You can view the agenda  here .) If there is anybody who still bel ... Read on »
Eileen Holderman Turns Down IOM Invitation by Erica Verrillo Posted in: Blog Posts in Chronic Fatigue Syndrome The third meeting of the Committee on Diagnostic Criteria for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome will be held on May 5-6, 2014. On May 5, there will be ... Read on »
Bio-ethics and ME tweet chat on April 7th by Erica Verrillo Posted in: Blog Posts in Chronic Fatigue Syndrome The following message is from @Katiissick There will be an open twitter chat on bioethics and ME on April 7, at 8:30 PM Eastern time (5:30 PT) thanks to Jennifer Che ... Read on »
Karina Hansen Still in Limbo by Erica Verrillo Posted in: Blog Posts in Chronic Fatigue Syndrome From: Justice for Karina Hansen  http://on.fb.me/1gF6Ynv We want to share this letter written by Per and Ketty Hansen to members of Parliament that was presented i ... Read on »
Sebelius Cancels IOM Contract, P2P Workshop, Blames Breakfast by Erica Verrillo Posted in: Blog Posts in Chronic Fatigue Syndrome Food finishes foolish funding By A Lotta Blarney WASHINGTON, April 1, 2014. Today, in an unprecedented move, HHS Secretary Kathleen Sebelius announced a unilate ... Read on »
"Doc Fix" Bill Paves the Way to Force Patients to Undergo Psychiatric Treatment by Erica Verrillo Posted in: Blog Posts in Chronic Fatigue Syndrome The expansion of involuntary outpatient commitment paves the way to a dangerous erosion of civil liberties that will lead to more  Justina Pelletiers , more  Karina Han ... Read on »
With Significant Advances But Little Money, Chronic Fatigue Syndrome Research Tries Crowdfunding by Erica Verrillo Posted in: Blog Posts in Chronic Fatigue Syndrome Below is another excellent article by David Tuller. By David Tuller, Buzzfeed , March 28, 2014 At a conference last week in San Francisco devoted to myalgic ... Read on »
Microbe Discovery Project Launches Crowdfunding for ME/CFS Microbiome Study by Erica Verrillo Posted in: Blog Posts in Chronic Fatigue Syndrome (The following message comes from the Microbe Discovery Project. To find out more, go HERE .) ____________________ "I think that the microbiome is going to be ... Read on »
ME/CFS Mortality Study: Research Participants Needed by Erica Verrillo Posted in: Blog Posts in Chronic Fatigue Syndrome Dr. Leonard Jason is a highly respected researcher in the field of ME/CFS. He is the only person in the U.S., to date, who has done epidemiological research on mortal ... Read on »
Fight over Diagnosis Leads to Hearing by Erica Verrillo Posted in: Blog Posts in Chronic Fatigue Syndrome Press Release: ME Association of Denmark Who decides if the cause of an illness is physical or psychological? Should psychiatrists have the right to incarcerate pat ... Read on »
IOM Public Meeting: Part 4: ME/CFS Patients Speak by Erica Verrillo Posted in: Blog Posts in Chronic Fatigue Syndrome The final segment of the IOM public meeting consisted of comments made by ME/CFS patients and their representatives. Each comment was allotted a total of three minutes, ... Read on »
CONTACT CONGRESS!!! by Erica Verrillo Posted in: Blog Posts in Chronic Fatigue Syndrome With the IOM in the news , now is the perfect time to contact your Congressmen and Senators. It is very easy. Go to  http://www.contactingthecongress.org/ Typ ... Read on »
IOM Retracts "Chronic Multi-Symptom Illness," Recommends BOTH Case Definitions for GWI by Erica Verrillo Posted in: Blog Posts in Chronic Fatigue Syndrome Image: Getty pictures In the face of universal criticism for its mishandling of GWI, the IOM has recommended a return to the name "Gulf War Illness," and the use of both  ... Read on »
Hemispherx Seeks Approval for Ampligen in Latin America  by Erica Verrillo Posted in: Blog Posts in Chronic Fatigue Syndrome Hemispherx Biopharma Announces Plans to File for Regulatory Approval of Ampligen(R) to Treat Chronic Fatigue Syndrome (CFS) in Three Additional Latin America Countries ... Read on »
IOM Public Meeting, January 27, 2014: Part 3: Voice of the Patient, and ME/CFS Group Presentations by Erica Verrillo Posted in: Blog Posts in Chronic Fatigue Syndrome The second half of the IOM public meeting was dominated by patients and advocates, which meant presentations were intelligent, cogent, well-organized, and comprehensi ... Read on »
“Chronic fatigue syndrome is a name that prevents a proper diagnosis of the real disease" -... by Erica Verrillo Posted in: Blog Posts in Chronic Fatigue Syndrome Billie and her son, Eric, 2006 Billie Moore has been on the Board of Trustees of the New Jersey Chronic Fatigue Syndrome Association since 2007. She also served ... Read on »
Battle Lines by Erica Verrillo Posted in: Blog Posts in Chronic Fatigue Syndrome After listening to the IOM public meeting, after reading about what is happening to Karina Hansen and Justina Pelletier, and after poring over comments on blogs, foru ... Read on »
IOM Public Meeting, January 27, 2014: Part 2: The CDC Multi-Site Study and P2P by Erica Verrillo Posted in: Blog Posts in Chronic Fatigue Syndrome Below is a detailed summary of the second hour of presentations given at the IOM public meeting on January 27, 2014. The two presenters were Elizabeth Unger, who tal ... Read on »
HealClick.com: New Patient Community Seeks to Turn Patient Sharing into a Tool for Research by Erica Verrillo Posted in: Blog Posts in Chronic Fatigue Syndrome Joey Tuan and Cari Allshouse have launched a project to bring ME/CFS sufferers together, and to gather data for future medical research. This is exactly what the commun ... Read on »
IOM Public Meeting: Part 1 - The Process by Erica Verrillo Posted in: Blog Posts in Chronic Fatigue Syndrome Below is a detailed summary of the introductory first hour of the IOM public meeting held on January 27, 2014. Even though the morning's agenda was largely focused on b ... Read on »