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Erica Verrillo

California 01096
Erica F. Verrillo was completing her doctorate in Speech Communication before falling ill with CFS in 1992. She is the co-author, with Lauren Gellman, of Chronic Fatigue Syndrome: A Treatment Guide, 1st Edition (St. Martin's). She is also the author of three middle reader fantasies, Elissa's... Full Bio
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“Chronic fatigue syndrome is a name that prevents a proper diagnosis of the real disease" -... by Erica Verrillo Posted in: Blog Posts in Chronic Fatigue Syndrome Billie and her son, Eric, 2006 Billie Moore has been on the Board of Trustees of the New Jersey Chronic Fatigue Syndrome Association since 2007. She also served ... Read on »
Battle Lines by Erica Verrillo Posted in: Blog Posts in Chronic Fatigue Syndrome After listening to the IOM public meeting, after reading about what is happening to Karina Hansen and Justina Pelletier, and after poring over comments on blogs, foru ... Read on »
IOM Public Meeting, January 27, 2014: Part 2: The CDC Multi-Site Study and P2P by Erica Verrillo Posted in: Blog Posts in Chronic Fatigue Syndrome Below is a detailed summary of the second hour of presentations given at the IOM public meeting on January 27, 2014. The two presenters were Elizabeth Unger, who tal ... Read on »
HealClick.com: New Patient Community Seeks to Turn Patient Sharing into a Tool for Research by Erica Verrillo Posted in: Blog Posts in Chronic Fatigue Syndrome Joey Tuan and Cari Allshouse have launched a project to bring ME/CFS sufferers together, and to gather data for future medical research. This is exactly what the commun ... Read on »
IOM Public Meeting: Part 1 - The Process by Erica Verrillo Posted in: Blog Posts in Chronic Fatigue Syndrome Below is a detailed summary of the introductory first hour of the IOM public meeting held on January 27, 2014. Even though the morning's agenda was largely focused on b ... Read on »
A Year Later - Karina Hansen Still Confined in Mental Ward by Erica Verrillo Posted in: Blog Posts in Chronic Fatigue Syndrome A year has gone by and  Karina Hansen , a young Danish woman with severe ME, is still confined in a mental ward, where her condition is deteriorating.  Her treatment ... Read on »
Definitions, Shmefinitions - Leonard Jason's Team Leaves Them All in the Dust by Erica Verrillo Posted in: Blog Posts in Chronic Fatigue Syndrome While the arguments surrounding the quest for the One and Only True Case Definition continue unabated, Leonard Jason and his cohorts have quietly developed an instrumen ... Read on »
ME/CFS Patients Tell the IOM Panel to Resign: Comments from the IOM Public Meeting by Erica Verrillo Posted in: Blog Posts in Chronic Fatigue Syndrome I have never been so proud of the ME/CFS advocacy community as I was on January 27 when 14 articulate, intelligent, determined patients and representatives told the IOM ... Read on »
How "Chronic Fatigue Syndrome" Obscures A Serious Illness by Erica Verrillo Posted in: Blog Posts in Chronic Fatigue Syndrome David Tuller was a reporter and editor for ten years at the San Francisco Chronicle. He served as health editor at Salon.com and frequently writes health stories for th ... Read on »
Diseases can stigmatize by Erica Verrillo Posted in: Blog Posts in Chronic Fatigue Syndrome Below is a post which appeared on the  OUP blog  last week.  Leonard Jason is a professor of psychology at DePaul University in Chicago, Illinois, where he also directs ... Read on »
Secrecy, Obfuscation, and Conflict of Interest - Public Comments by Edward Burmeister on the IOM... by Erica Verrillo Posted in: Blog Posts in Chronic Fatigue Syndrome Below are comments submitted to the IOM by Attorney Edward Burmeister* for the public meeting to be held on January 27. Please send your own comments to: mecfsopensessi ... Read on »
We Have Been Kept Silent for Too Long by Erica Verrillo Posted in: Blog Posts in Chronic Fatigue Syndrome On January 27, the IOM will hold its only public meeting regarding its contract to develop diagnostic criteria for ME/CFS. The contract has been hotly contested by , an ... Read on »
cruelty, revenge and sadism - how medical professionals have failed our children by Erica Verrillo Posted in: Blog Posts in Chronic Fatigue Syndrome In this interview sponsored by the  Dutch ME/CFS Association , Dr. Nigel Speight, a British pediatrician, explains how the medical system has failed young people with M ... Read on »
Federal Lawsuit Filed Against HHS and NIH Over IOM Contract by Erica Verrillo Posted in: Blog Posts in Chronic Fatigue Syndrome This lawsuit is the culmination of Jeannette Burmeister's efforts over the past four months to gain access to documents regarding the IOM contract through the Freedom o ... Read on »
Behind closed doors by Erica Verrillo Posted in: Blog Posts in Chronic Fatigue Syndrome The following post by Jennie Spotila appeared today on  Occupy CFS . It speaks to the secrecy with which the federal government has surrounded all issues pertaining to ... Read on »
Lessons I learned from the end of a stick by Erica Verrillo Posted in: Blog Posts in Chronic Fatigue Syndrome Every once in a while, life gives us a lesson that we will never forget. Mine came on May 6, 1971, in Boston. On that morning over 3,000 anti-war demonstrators gath ... Read on »
2013 - A Year to Remember by Erica Verrillo Posted in: Blog Posts in Chronic Fatigue Syndrome What a year this has been for the ME/CFS community! With four major conferences held in the US, the UK, and Australia, the inauguration of two new research and treat ... Read on »
“We will speak our truth” - Susan Kreutzer Goes to Washington, DC by Erica Verrillo Posted in: Blog Posts in Chronic Fatigue Syndrome Image: Nigel Lyons http://www.nigelyons.com/ By Erica Verrillo On Tuesday, December 10th, Susan Kreutzer continued her campaign to draw attention to the plight of ne ... Read on »
New Advocates’ Letter to Secretary Sebelius Re IOM Contract Open for Signatures by Erica Verrillo Posted in: Blog Posts in Chronic Fatigue Syndrome Below is a letter written by Lisa Petrison and Jeannette Burmeister. I signed the first advocates' letter, and have signed this one. It is quite unlikely, given their p ... Read on »
HHS to ME/CFS Community: We don't care what you think. by Erica Verrillo Posted in: Blog Posts in Chronic Fatigue Syndrome Two days ago, Jennie Spotila gave a "(Lack of) Progress Report" for the December CFS Advisory Committee webinar. (See her blog,  Occupy CFS .) By all accounts, the even ... Read on »