I’ve been attending the children’s hospital since my diagnosis but now I’m 19 I’ve been forced to change to adult services. The children’s hospital holds a transition clinic for those swapping to adult services so earlier this month I went along to meet my new neurologist.
In the meeting was my new doctor, the epilepsy specialist nurse that works with him and the nurse I will be sad to leave. My new doctor was very nice and every time he asked me a question I couldn’t remember the answer to, my ‘old’ nurse would step in to help. Generally we just talked about the seizures I still have and his plan of action for me. He is really laid back and not at all a ‘stuffy’ doctor so I was chuffed with that.
The general consensus for my medication is an increased dosage of Epilim, a move I am fiercely against. It’s probably a lot to do with my stubbornness but the last time I was on a higher dose I was hungry literally all the time. It seems quite trivial not to go on a higher dose just because of that but it’s a horrible feeling being hungry all the time, never mind the weight gain that comes with it.
In other news I have been asked to talk at a conference full of doctors and medical folk about my experiences with epilepsy but it doesn’t look like I’ll be able to do it due to uni commitments which I am rather sad about. There’s nothing I love more than talking about myself ;)
(Apologies for the somewhat brief blog, the space bar on this uni computer is driving me bonkers)
In the meeting was my new doctor, the epilepsy specialist nurse that works with him and the nurse I will be sad to leave. My new doctor was very nice and every time he asked me a question I couldn’t remember the answer to, my ‘old’ nurse would step in to help. Generally we just talked about the seizures I still have and his plan of action for me. He is really laid back and not at all a ‘stuffy’ doctor so I was chuffed with that.
The general consensus for my medication is an increased dosage of Epilim, a move I am fiercely against. It’s probably a lot to do with my stubbornness but the last time I was on a higher dose I was hungry literally all the time. It seems quite trivial not to go on a higher dose just because of that but it’s a horrible feeling being hungry all the time, never mind the weight gain that comes with it.
In other news I have been asked to talk at a conference full of doctors and medical folk about my experiences with epilepsy but it doesn’t look like I’ll be able to do it due to uni commitments which I am rather sad about. There’s nothing I love more than talking about myself ;)
(Apologies for the somewhat brief blog, the space bar on this uni computer is driving me bonkers)