People with epilepsy in Australia can now use a new online epilepsy diary to help them manage their condition. My Epilepsy Diary enables them to track their seizures, their medicines, and their overall well-being on their computer or smartphone. The digital tool will also allow people to grant their health care providers access to their recorded information, significantly improving patient/care giver communications and enhancing patient compliance and treatment.
My Epilepsy Diary, which has already been used successfully by more than 15,000 people in the United States to better manage their epilepsy, is sponsored in Australia by Epilepsy Action Australia , the largest provider of specialist epilepsy services in the Australian community It was originally developed by Irody with guidance by the Epilepsy Therapy Project who operates epilepsy.com in the USA. The product is also in use for post-marketing clinical studies.
“As an unaffiliated non-profit organization, Epilepsy Action is delighted to be able to make My Epilepsy Diary available to people with epilepsy in Australia, so they can record their daily experiences of epilepsy easily and accurately. If they wish, they can share their information with their family, healthcare professionals and caregivers, so they can help them achieve best possible control of their epilepsy and optimize their treatment,” said Carol Ireland, CEO of Epilepsy Action Australia.
My Epilepsy Diary is uniquely designed to capture comprehensive patient information and to assist patients with their daily routine. In addition to recording seizures, side effects or progress, users can document their medical history, create reports, response plans, and view data in narrative or graphical form. Patients can also track and manage their therapies with reminders to be sent by email or local smart phone notification to enhance medication compliance. A Personal History module allows them to build much more detailed profiles that include non-epilepsy-specific details of the patient’s life and health, including familial patterns, which may impact treatment options and effectiveness.
“Because the product is available on all popular models of smartphones and data is stored securely online, patients know their records will be kept even if they switch phones or replace a lost phone, while their authorized treating doctors can access patient-reported outcomes immediately” said Dr. Eyal Bartfeld, President and CEO of Irody.
‘My Epilepsy Diary’ has been adapted for people living with epilepsy in Australia by Epilepsy Action Australia. Patients can register for My Epilepsy Diary Australia at https://epilepsy.org.au/diary and make entries online, or by downloading a My Epilepsy Diary app to their iPhone, iPad, iPod Touch or Android family of phones, tablets and book readers.
For further information Jodie Trowell 02 9856 7093 jtrowell(at)epilepsy(dot)org(dot)au About the Epilepsy Action Australia Epilepsy Action Australia ( http://www.epilepsy.org.au ) is a company limited by guarantee which provides professional service delivery Australia wide. It is the largest provider of specialist epilepsy services in the community for people with epilepsy and other seizure disorders, their carers, families and the broader community.
About Irody Irody ( http://www.irody.com ) is a privately-held technology company devoted to helping patients with chronic conditions leverage mobile technology to better manage their health.