Health knowledge made personal
Join this community!
› Share page:
Search posts:

Loving Life

Posted Jul 16 2010 12:00am
WoW what a mad mad start to the Summer! We had a fab time in Gran Canaria, got stuck out there amidst the volcano crisis but Thomas Cook were excellent and looked after us really well. Patrick travelled really well, he was a bit more sleepy than usual during the days as it was so hot out there but he came alive in the evenings and we all had a really nice, relaxed family break. We've been back for a while now and Patrick's been going to playgroup twice a week which he loves! He gets really excited on school days and always comes out smiling and laughing. He's only been there for a term and has his last day there on Monday but he starts big school nursery in September which will be brilliant for him. He's got a place at our first choice of schools, Linwood School which I'm sure he'll do really well at.
It's hard to believe we've reached this point, there have deffinately been times over the past fews years where I wondered if he'd ever make it but I'm so happy to say that he's doing so well, so happy and healthy it really is amazing how far he's come. His epilepsy is well controlled again after a slight downward turn as we weaned one of his meds off. We've since put him back on the drug and he's not really having any seizures. Physically he's grown again (he really is a big boy) and his head control and trunk are getting stronger all the time.
We're at the start of the summer holidays now and have many fun packed days planned. We're starting with a trip to Naomi House though for some quality time and then we're off to London for a few days to visit friends and relatives and at the end of August we're off down to Devon for a week in a big country pad with 23 of our relatives, so loads of magical memories to be made in the weeks ahead!

One thing we're also doing in August is a sponsored walk to raise some money to buy Patrick a special comfy seat and an 'all-terrain' buggy. We are determined that Patrick will get to experience as much of life as possible and feel that he would really benefit from these items, especially the buggy as we'll be able to take him into the forest and down to the beach which will be fun for him and Isaac. The walk will be held on the 14th August and will be 5 miles long from Hengistbury Head to Bournemouth Peir. We are looking for volunteers who wouldn't mind walking with us and getting friends and family to sponsor them. If you would be interested please let me know asap and I will send you a sponsor form. If you can't do the walk but would like to sponsor me and Isaac then you can do so easily by using Paypal, we have a special donation page that you can use to donate.

Pennies for Patrick

Thanks to all those who are already signed up for the walk, we're looking forward to it.
Post a comment
Write a comment:

Related Searches