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Living with Epilepsy

Posted Nov 09 2012 12:46pm
“Illness is an endless journey that often times leads one to a life changing experience on the physical, spiritual and emotional plane of existence.”

Living with Epilepsyby Annie Margaret Thompson

This is my story, Living with Epilepsy. I have lived with seizures for 16 years now and I want to share my experiences and discoveries so others with Epilepsy can compare their experiences with mine or for others without Epilepsy being able to understand how a person lives with Epilepsy and how it affects one’s life.

As a young toddler I had febrile seizures and then outgrew them; until one day in January of 1993 I experienced a full-blown Gran Mal seizure. Months later they became more frequent, went through tests and was put on anti-seizure medication. Was not happy about this since I don't like taking medicines and the side effects, but to live and drive, the benefits out-weighed the risks (somewhat). Every seizure I had, I documented everything. Spent many hours in an emergency room on a regular basis and test after test, more drugs and everything came back normal. Spent several days on bed rest, couldn't function, and then on a driving restriction for 3 months at a time.

It has not been easy and is a strain on my life, still. It has always frustrated me since I feel that Epilepsy is a condition of an underlying problem within the body. I still feel this way today and years ago when it first began. As you will discover, you may understand why I believe as I do.

With my documentation I eventually discovered a pattern, every month like clock work, I would have several seizures for two weeks a month. This was always tuned into my periods (gotta love those hormones). I started to do more research and found information on Catamenial Epilepsy, I finally knew what was causing mine for the most part; for it had the biggest impact on my seizures and that was hormones --- estrogen and progesterone with too much excess estrogen that triggered the seizures and not enough progesterone which actually lessens the seizures. Did my neurologist believe me?

At first, no, then as it became more widely known and more clear to my seizure pattern with my regular emergency room visits monthly, then the belief system changed.
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