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Please take a look at the latest ... by Emily T. Patient Expert Posted in: Blog Posts in Cystic Fibrosis Please take a look at the latest LLTGL blog. Find it inspirational? Please email/send link to as many of your friends and work colleagues as you can in the hope they'll c ... Read on »
I was thoroughly unimpressed by ... by Emily T. Patient Expert Posted in: Blog Posts in Cystic Fibrosis I was thoroughly unimpressed by now. I had had a reading that had been ridiculously high much earlier in the year, had a re-test, and then it was fine. I explained this to the ... Read on »
That was the end of my hospitali ... by Emily T. Patient Expert Posted in: Blog Posts in Cystic Fibrosis That was the end of my hospitalised blogging as things moved quite quickly after that. Good old Dr C (my fab consultant who tells it like it is, doesn’t take any nonsense and ... Read on »
So yesterday's (posted) blog was ... by Emily T. Patient Expert Posted in: Blog Posts in Cystic Fibrosis So yesterday's (posted) blog was written when I was in hosp on the Tuesday and had no internet (by the way I am out now and these are being posted retrospectively). And h ... Read on »
An interesting couple of days wo ... by Emily T. Patient Expert Posted in: Blog Posts in Cystic Fibrosis An interesting couple of days would probably be the best way of summing up the beginning of this week.... Some of you probably saw me on This Morning (thanks for all the ... Read on »
Please support Holly's campaign by Emily T. Patient Expert Posted in: Blog Posts in Cystic Fibrosis Please support Holly's campaign Read on »
So Gordon Brown's Opt Out propos ... by Emily T. Patient Expert Posted in: Blog Posts in Cystic Fibrosis So Gordon Brown's Opt Out proposal has been turned down by the Organ Donor Task Force. Interestingly, I am neither surprised nor bothered by this result. Opt-out seem ... Read on »
I've been thinking a lot about d ... by Emily T. Patient Expert Posted in: Blog Posts in Cystic Fibrosis I've been thinking a lot about death recently. That got you sitting up and paying attention didn't it ;) In all seriousness, I have been thinking a lot about it but ... Read on »
SHE WON!!Holly won Battlefront! ... by Emily T. Patient Expert Posted in: Blog Posts in Cystic Fibrosis SHE WON!! Holly won Battlefront! We're all absolutely thrilled for her; she worked so hard campaigning and totally deserves this. As she still has one v new (and appa ... Read on »
A year ago today... I cannot bel ... by Emily T. Patient Expert Posted in: Blog Posts in Cystic Fibrosis A year ago today... I cannot believe the most magical and wonderful first year has flown by so fast...I am so lucky. Read on »
On Tuesday, Oli and I went to se ... by Emily T. Patient Expert Posted in: Blog Posts in Cystic Fibrosis On Tuesday, Oli and I went to see a very special couple. Nyila and Zulf live in Coventry, and had agreed to chat to us and to have their story filmed so we can use it for rais ... Read on »
On Saturday, Oli and I joined ou ... by Emily T. Patient Expert Posted in: Blog Posts in Cystic Fibrosis On Saturday, Oli and I joined our advocate Nelly in Uxbridge to walk 5k. Why? Because of the World's Biggest Walk, that's why! Nelly had organised everything and at midda ... Read on »
YAY!One of our superstar advocat ... by Emily T. Patient Expert Posted in: Blog Posts in Cystic Fibrosis YAY! One of our superstar advocates, Holly Shaw, has got her new kidney! It's very early days, but so far so good. If you get a minute please do pop along to he ... Read on »
It's been a sad 24 hours as we l ... by Emily T. Patient Expert Posted in: Blog Posts in Cystic Fibrosis It's been a sad 24 hours as we lost Toria (above) after a long and valiant struggle with CF. Toria leaves behind not only a grieving family but an 8 month old little boy. ... Read on »
I've had one of those weekends w... by Emily T. Patient Expert Posted in: Blog Posts in Cystic Fibrosis I've had one of those weekends where you're just doing bits and bobs, but loads of wonderfully lovely bits and bobs. Catching up with friends, visiting people you've been ... Read on »
Click here to see a photo of me ... by Emily T. Patient Expert Posted in: Blog Posts in Cystic Fibrosis Click here to see a photo of me being extremely professional at the Justgiving Talk. Suggested captions in comments section on the LLTGL blog appreciated ;) Read on »
Last week I did a talk at the Ju... by Emily T. Patient Expert Posted in: Blog Posts in Cystic Fibrosis Last week I did a talk at the Justgiving away day. For those of you who don't know, justgiving is an online service that facilitates charitable donations online. I have been u ... Read on »
Apologies for the slight delay i... by Emily T. Patient Expert Posted in: Blog Posts in Cystic Fibrosis Apologies for the slight delay in blogging, I have had a very busy (but fantastic) 2 weeks being a Tour manager around London and France. Anyhoo, back to the world of the real ... Read on »
Adjectives and formal English vo... by Emily T. Patient Expert Posted in: Blog Posts in Cystic Fibrosis Adjectives and formal English vocabulary fail me right now so I shall start by using a phrase invented by my mother and saying I am currently Smilier than Mr Smiley of Smile ... Read on »
Yesterday was a really lovely da... by Emily T. Patient Expert Posted in: Blog Posts in Cystic Fibrosis Yesterday was a really lovely day, which was a surprise at it stemmed from a potentially terrible evening the night before. Thursday evening, I was waiting for A to get home ... Read on »