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Sorry for the long delay between ... by Emily T. Patient Expert Posted in: Blog Posts in Cystic Fibrosis Sorry for the long delay between posts yet again... You can always tell when life is going well as I am around less to write long waffle, so yet again do take it ... Read on »
I was at a LLTGL meeting all day ... by Emily T. Patient Expert Posted in: Blog Posts in Cystic Fibrosis I was at a LLTGL meeting all day today. It went really well and was so fantastic to see everyone and catch up; I do love what I do and the fantastic people I get to know throu ... Read on »
wooaaah, where did the last week ... by Emily T. Patient Expert Posted in: Blog Posts in Cystic Fibrosis wooaaah, where did the last week go?! So yes, Mauritius. It was incredible. It's somewhere I have been wanting to go for a very very long time and to be honest I never ... Read on »
Sorry for the rather large delay ... by Emily T. Patient Expert Posted in: Blog Posts in Cystic Fibrosis Sorry for the rather large delay in posting but I do have a good reason... Mauritius. Normal Service will be resumed shortly. ... Read on »
Reading this blog is bringing te ... by Emily T. Patient Expert Posted in: Blog Posts in Cystic Fibrosis Reading this blog is bringing tears of joy to my eyes at the moment. So very happy for them. Read on »
Thank you so much for all your f ... by Emily T. Patient Expert Posted in: Blog Posts in Cystic Fibrosis Thank you so much for all your feedback and opinions on the comment posted by “Dave.” As promised, here are my opinions and the reasons behind them. The idea of LifeS ... Read on »
Click on the comments page of th ... by Emily T. Patient Expert Posted in: Blog Posts in Cystic Fibrosis Click on the comments page of the below post and read the comment, sorry, advertisment by "Dave" Very interested on your opinions on this "solution" to the problem of org ... Read on »
So I went to see Seven pounds at ... by Emily T. Patient Expert Posted in: Blog Posts in Cystic Fibrosis So I went to see Seven pounds at the weekend. I haven’t blogged about it yet as I wanted to let it all settle first. I did actually wake up that night thinking about it ... Read on »
Snow.Glorious, wonderful, exciti ... by Emily T. Patient Expert Posted in: Blog Posts in Cystic Fibrosis Snow. Glorious, wonderful, exciting, childish snow. It started on Sunday night, with a thin sprinkling settling by the time I was leaving my parents house. W ... Read on »
I'm on Twitter now.So far, I've ... by Emily T. Patient Expert Posted in: Blog Posts in Cystic Fibrosis I'm on Twitter now. So far, I've managed to add myself so I am following me. Twice. No one is quite sure how, and so I am obscurely proud of my technical (in)capabilities ... Read on »
15 Top Tips for Lung Swop Op-ers ... by Emily T. Patient Expert Posted in: Blog Posts in Cystic Fibrosis 15 Top Tips for Lung Swop Op-ers (An idea openly stolen from fellow blogger golightly ) 1. Everyone tells you to make sure your case is packed for transplant. What they ... Read on »
Dear Gaz,I can't believe it's al ... by Emily T. Patient Expert Posted in: Blog Posts in Cystic Fibrosis Dear Gaz, I can't believe it's already been 4 years today since you left us. Where has the time gone? You were my first really close friend who was a CFer, and to be hone ... Read on »
Today is a very special friend's ... by Emily T. Patient Expert Posted in: Blog Posts in Cystic Fibrosis Today is a very special friend's birthday. Happy Birthday Emmie; I hope you are feeling better and enjoy your day! lots of love xxxxx Read on »
It's been a tough 24 hours.A fri ... by Emily T. Patient Expert Posted in: Blog Posts in Cystic Fibrosis It's been a tough 24 hours. A friend of mine got his call for Transplant back in September. He had a complicated recovery (didn't alarm me due to my history) and I grew q ... Read on »
ER. Does anyone watch it? I used ... by Emily T. Patient Expert Posted in: Blog Posts in Cystic Fibrosis ER. Does anyone watch it? I used to be a huge fan (admittedly predominantly driven by my desire to be treated by Dr Kovac) but I haven't watched it for a while. Just a wa ... Read on »
Happy New Year!I hope everyone h ... by Emily T. Patient Expert Posted in: Blog Posts in Cystic Fibrosis Happy New Year! I hope everyone had a fantastic and sparkly Christmas - mine was wonderful and consisted predominantly of family, food and a great deal of fun. I caugh ... Read on »
Another manic but fantastic week ... by Emily T. Patient Expert Posted in: Blog Posts in Cystic Fibrosis Another manic but fantastic week this week. In my job, getting the pupils to perform in concerts is quite a bit part of it. And what time of year guarantees a concert or ... Read on »
I've been a bit quiet haven't I. ... by Emily T. Patient Expert Posted in: Blog Posts in Cystic Fibrosis I've been a bit quiet haven't I... Sorry about that. Life is hectic. But wonderful :) I am trying to get organised for Christmas (and not succeeding) trying to keep ... Read on »
We have a new website!WEEEEE!Go ... by Emily T. Patient Expert Posted in: Blog Posts in Cystic Fibrosis We have a new website! WEEEEE! Go and have a look! It's obviously not quite finished yet but hopefully you'll agree it's looking pretty good so far! Can you tell ... Read on »
Another hectic week has flown by ... by Emily T. Patient Expert Posted in: Blog Posts in Cystic Fibrosis Another hectic week has flown by... But hectic in a really really good way. Lots and lots going on behind the scenes for LLTGL, Holly is feeling much better and mending w ... Read on »