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ohhhh lordy. Time has gone ... by Emily T. Patient Expert Posted in: Blog Posts in Cystic Fibrosis ohhhh lordy. Time has gone rather fast. How is it that during the school holidays I'm even less capable of keeping my blog up to date?! This will be a brief one as I a ... Read on »
I have had a rather busy and e ... by Emily T. Patient Expert Posted in: Blog Posts in Cystic Fibrosis I have had a rather busy and exciting week. For the last few months, A and I have been working on getting our very own little home. I have, over this time, learnt that I ... Read on »
Is this the reason that ... by Emily T. Patient Expert Posted in: Blog Posts in Cystic Fibrosis Is this the reason that Scotland has gone from having poor organ donation rates to being one of the leading regions in the UK ? London is one of the worst. That ma ... Read on »
I've been a bit quiet recently.( ... by Emily T. Patient Expert Posted in: Blog Posts in Cystic Fibrosis I've been a bit quiet recently. (she says stating the obvious). This was mostly to do with work being so busy. Which I did pre-warn about. I've also had a bit of a c ... Read on »
This week is National Transplant ... by Emily T. Patient Expert Posted in: Blog Posts in Cystic Fibrosis This week is National Transplant Week. Please do something. Do anything that might raise further awareness. Talk about it, get some stickers, get some leaflets, send an e ... Read on »
I have a sneaking suspicion that ... by Emily T. Patient Expert Posted in: Blog Posts in Cystic Fibrosis I have a sneaking suspicion that whatever my apologies and promises, this blog may well remain fairly rushed and infrequently updated until the end of term. Luckily (for me) t ... Read on »
Gah.Where did the time go!?OK I ... by Emily T. Patient Expert Posted in: Blog Posts in Cystic Fibrosis Gah. Where did the time go!? OK I am going to consolidate the past 2 weeks into a pacey and consise blog (ha). Oli and I did some more filming with William's ... Read on »
It's been another very busy but ... by Emily T. Patient Expert Posted in: Blog Posts in Cystic Fibrosis It's been another very busy but very good week. I've been on half term so obviously in my brain that meant I could cram three times as much into the week as usual. There's ... Read on »
I know I know....Completely lax ... by Emily T. Patient Expert Posted in: Blog Posts in Cystic Fibrosis I know I know.... Completely lax blogging-ness yet again. Sorry. Life just never seems to stop at the moment. Well actually, I've paused today - first day off in weeks - ... Read on »
WE DID IT!!I would write a lengt ... by Emily T. Patient Expert Posted in: Blog Posts in Cystic Fibrosis WE DID IT!! I would write a lengthy blog about it but have somehow thrown myself into a rediculously busy week this week. So instead I shall cheat and link to Jac's ... Read on »
ohmygod ohmygod ohmygod.This wee ... by Emily T. Patient Expert Posted in: Blog Posts in Cystic Fibrosis ohmygod ohmygod ohmygod. This weekend I will be in Scotland walking along the coast. I am terrified. Not on my own though....with 170 others, all of whom are walking as p ... Read on »
Swine Flu.It's everywhere. And I ... by Emily T. Patient Expert Posted in: Blog Posts in Cystic Fibrosis Swine Flu. It's everywhere. And I mean everyyyyyywhere. No not the infectious sort silly, the hype and the Media "round the clock, this may or may not happen" report ... Read on »
Oops.Well technically this is "a ... by Emily T. Patient Expert Posted in: Blog Posts in Cystic Fibrosis Oops. Well technically this is "after the weekend" - just quite some time after. The Ball was fantastic. It was organised by Lorraine, mother of 2 boys with CF, and ... Read on »
I'm off to Nottingham tomorrow. ... by Emily T. Patient Expert Posted in: Blog Posts in Cystic Fibrosis I'm off to Nottingham tomorrow. I'm heading up there to attend a CF Ball, organised by a mother of two boys with CF. I'm doing a speech, and weirdly, I'm quite nervous. ... Read on »
Jess is someone I've mentioned m ... by Emily T. Patient Expert Posted in: Blog Posts in Cystic Fibrosis Jess is someone I've mentioned many times over the years. She is the feisty small blonde person with the infectious giggle and a survival ability which surpasses anything I've ... Read on »
Just a quickie to say I am still ... by Emily T. Patient Expert Posted in: Blog Posts in Cystic Fibrosis Just a quickie to say I am still here and fine and hope everyone had a lovely Easter... Things have been crazy, and I was going to write about it, but a)because I'm lazy ... Read on »
Holly's big day is on Tuesday.Am ... by Emily T. Patient Expert Posted in: Blog Posts in Cystic Fibrosis Holly's big day is on Tuesday. Am uber-excited for her...and also incredibly nervous. I'll be in London with her and the Battlefront film crew pretty much all o ... Read on »
Could you repost this somewhere? ... by Emily T. Patient Expert Posted in: Blog Posts in Cystic Fibrosis Could you repost this somewhere? Please help Holly spread the word... Read on »
And yet another week goes by wit ... by Emily T. Patient Expert Posted in: Blog Posts in Cystic Fibrosis And yet another week goes by without me posting... ...but let me assure you it was a fantastic week! The concert (which I had been losing sleep over I was so nervou ... Read on »
Look, it's me. Back when I was s ... by Emily T. Patient Expert Posted in: Blog Posts in Cystic Fibrosis Look, it's me. Back when I was small and cute. So I am now a quarter of a century old. A bit scary, but mostly very exciting that I got this far. That sounds incredib ... Read on »