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Just to reassure you, I haven' ... by Emily T. Patient Expert Posted in: Blog Posts in Cystic Fibrosis Just to reassure you, I haven't done any of the following a) died b) hit my head and suffered from amnesia c) given up blogging d) fallen down a hole somewhere (likely, ... Read on »
“Hope is important because it ... by Emily T. Patient Expert Posted in: Blog Posts in Cystic Fibrosis “Hope is important because it can make the present moment less difficult to bear. If we believe that tomorrow will be better, we can bear a hardship today.” - Thich Nhat H ... Read on »
Jess. I've started rewo ... by Emily T. Patient Expert Posted in: Blog Posts in Cystic Fibrosis Jess. I've started rewording this blog now for the umpteenth time so I'm just going to write; I keep worrying as to whether I am saying the right thing or not. I need ... Read on »
I think most of you have heard ... by Emily T. Patient Expert Posted in: Blog Posts in Cystic Fibrosis I think most of you have heard the heartbreaking news about Jess , but this blog isn't about that, as I can't write that blog just now. In fact I'm struggling to write anyth ... Read on »
Firstly, Merry Christmas every ... by Emily T. Patient Expert Posted in: Blog Posts in Cystic Fibrosis Firstly, Merry Christmas everyone! I hope everyone had a Christmas full of laughter, fun and merriment. I had a wonderful Christmas; our family have these traditions whi ... Read on »
So that was back in 2005. Now to ... by Emily T. Patient Expert Posted in: Blog Posts in Cystic Fibrosis So that was back in 2005. Now to last Friday’s events... The evening was in support of the Millennium Mum’s campaign and invitees were various very active twitter folk (don ... Read on »
"Can you take me to Downing St ... by Emily T. Patient Expert Posted in: Blog Posts in Cystic Fibrosis "Can you take me to Downing Street please?" I said as I jumped in the cab at Waterloo. The cabby, clearly somewhat disbelieving repeated it for confirmation before we set of ... Read on »
Rediculously quick blog with o ... by Emily T. Patient Expert Posted in: Blog Posts in Cystic Fibrosis Rediculously quick blog with only one real point to it. A very nice guy called Rob contacted me last month and asked if he could do a 3 minute documentary about me for Ch ... Read on »
OK so I actually do have a goo ... by Emily T. Patient Expert Posted in: Blog Posts in Cystic Fibrosis OK so I actually do have a good excuse for not writing this time. I've been in hospital. It feels a bit weird to write that, and it was even weirder being an inpatient ag ... Read on »
The past week has flown by (as ... by Emily T. Patient Expert Posted in: Blog Posts in Cystic Fibrosis The past week has flown by (as has the weekend, apparently). It's lovely being back at school; the fact I love seeing the kids so much when I get back reminds me I am in the ... Read on »
It has been the longest bloggi ... by Emily T. Patient Expert Posted in: Blog Posts in Cystic Fibrosis It has been the longest blogging break in the history of mankind. OK well not quite that drastic, but it's been pretty lengthy, even by my standards. I am, however, still ... Read on »
OK, some more answers for you ... by Emily T. Patient Expert Posted in: Blog Posts in Cystic Fibrosis OK, some more answers for you fabulously inquisitive folk, but before I do, a quick plug to go to www.savejess.org.uk and buy those tickets if you haven’t done already! S ... Read on »
Taken from the LLTGL Blog:We are ... by Emily T. Patient Expert Posted in: Blog Posts in Cystic Fibrosis Taken from the LLTGL Blog: We are very very excited to announce our upcoming ‘Save Jess-tival', a fantastic night of music and comedy to honour our wonderful Jess and to e ... Read on »
Check me out, I’ve made a star ... by Emily T. Patient Expert Posted in: Blog Posts in Cystic Fibrosis Check me out, I’ve made a start on the questions! There are quite a few (I don’t mind, I’m finding it really interesting to try and answer them!) so this may be several inst ... Read on »
I am going to answer your ques ... by Emily T. Patient Expert Posted in: Blog Posts in Cystic Fibrosis I am going to answer your questions, I haven't forgotten...in fact I have made a start. Some of you have challenged me....it's harder than I thought! And I am going to bl ... Read on »
Stolen idea from fellow blogge ... by Emily T. Patient Expert Posted in: Blog Posts in Cystic Fibrosis Stolen idea from fellow blogger Becky (who keeps a blog about her life as a mum to 2 children with CF)... Q & A. Ask me a question. Ask me more than one if you like. ... Read on »
Feeling a bit helpless tonight ... by Emily T. Patient Expert Posted in: Blog Posts in Cystic Fibrosis Feeling a bit helpless tonight. Jess has had a rotten day, which resulted in her being rushed to A&E and from there being transferred to ICU. She is now on the main war ... Read on »
This is going to be a long blo ... by Emily T. Patient Expert Posted in: Blog Posts in Cystic Fibrosis This is going to be a long blog, as Sunday 6th of September was a long (but very wonderful) day. 2006 2009 The lady in the blue hoodie in the first shot a ... Read on »
There haven't been many blogs ... by Emily T. Patient Expert Posted in: Blog Posts in Cystic Fibrosis There haven't been many blogs about me recently. Mostly about what else is going on. This is for a number of reasons, but the two primary ones are that I do rushed blogs now ... Read on »
Shortest of shortyshortshort b ... by Emily T. Patient Expert Posted in: Blog Posts in Cystic Fibrosis Shortest of shortyshortshort blogs: The Advocate weekend was awesome, predominantly because the Advocates themselves are awesome. You can read about it all on the LLTGL ... Read on »