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"Rich is excited about what ... by Emily T. Patient Expert Posted in: Blog Posts in Cystic Fibrosis "Rich is excited about what the future might hold" That's my mate Rich's facebook status at the moment. A couple of weeks ago, Rich was in the Brompton hospital wher ... Read on »
Four years ago today, my ... by Emily T. Patient Expert Posted in: Blog Posts in Cystic Fibrosis Four years ago today, my life was saved by someone I never had the priviledge of meeting. I didn't know them, I didn't know their family, they knew nothing about me ... Read on »
Is this the reason that ... by Emily T. Patient Expert Posted in: Blog Posts in Cystic Fibrosis Is this the reason that Scotland has gone from having poor organ donation rates to being one of the leading regions in the UK ? London is one of the worst. That ma ... Read on »
“A man's worth is no greater t ... by Emily T. Patient Expert Posted in: Blog Posts in Cystic Fibrosis “A man's worth is no greater than the worth of his ambitions” - Marcus Aurelius “When ambition ends, happiness begins.” - Thomas Merton I'd start with my usual ... Read on »
“Hope is important because it ... by Emily T. Patient Expert Posted in: Blog Posts in Cystic Fibrosis “Hope is important because it can make the present moment less difficult to bear. If we believe that tomorrow will be better, we can bear a hardship today.” - Thich Nhat H ... Read on »
"Can you take me to Downing St ... by Emily T. Patient Expert Posted in: Blog Posts in Cystic Fibrosis "Can you take me to Downing Street please?" I said as I jumped in the cab at Waterloo. The cabby, clearly somewhat disbelieving repeated it for confirmation before we set of ... Read on »
1st January 2011. I think ... by Emily T. Patient Expert Posted in: Blog Posts in Cystic Fibrosis 1st January 2011. I think I'll type that again. Just because I can. 1st January 2011. There's nothing quite like a new year to remind you just how bloody lucky you ... Read on »
Apologies for being profoundly ... by Emily T. Patient Expert Posted in: Blog Posts in Cystic Fibrosis Apologies for being profoundly rubbish on the blogging front. As per usual, whenever I go silent, it's a good sign; it means life is so busy that I've inevitably triple b ... Read on »
Chapter 748: The story of a wh ... by Emily T. Patient Expert Posted in: Blog Posts in Cystic Fibrosis Chapter 748: The story of a wheezy penguin. Well firstly, I had a lovely half term. A and I took the opportunity to get away and went to Derbyshire where we also visited ... Read on »
Check me out, I’ve made a star ... by Emily T. Patient Expert Posted in: Blog Posts in Cystic Fibrosis Check me out, I’ve made a start on the questions! There are quite a few (I don’t mind, I’m finding it really interesting to try and answer them!) so this may be several inst ... Read on »
Feeling a bit helpless tonight ... by Emily T. Patient Expert Posted in: Blog Posts in Cystic Fibrosis Feeling a bit helpless tonight. Jess has had a rotten day, which resulted in her being rushed to A&E and from there being transferred to ICU. She is now on the main war ... Read on »
Firstly, Merry Christmas every ... by Emily T. Patient Expert Posted in: Blog Posts in Cystic Fibrosis Firstly, Merry Christmas everyone! I hope everyone had a Christmas full of laughter, fun and merriment. I had a wonderful Christmas; our family have these traditions whi ... Read on »
I am feeling increasingly frus ... by Emily T. Patient Expert Posted in: Blog Posts in Cystic Fibrosis I am feeling increasingly frustrated following comments and remarks surrounding this story here so I had to blog about it. The story is essentially an incredibly sad one; ... Read on »
I am going to answer your ques ... by Emily T. Patient Expert Posted in: Blog Posts in Cystic Fibrosis I am going to answer your questions, I haven't forgotten...in fact I have made a start. Some of you have challenged me....it's harder than I thought! And I am going to bl ... Read on »
I have had a rather busy and e ... by Emily T. Patient Expert Posted in: Blog Posts in Cystic Fibrosis I have had a rather busy and exciting week. For the last few months, A and I have been working on getting our very own little home. I have, over this time, learnt that I ... Read on »
I think most of you have heard ... by Emily T. Patient Expert Posted in: Blog Posts in Cystic Fibrosis I think most of you have heard the heartbreaking news about Jess , but this blog isn't about that, as I can't write that blog just now. In fact I'm struggling to write anyth ... Read on »
It has been the longest bloggi ... by Emily T. Patient Expert Posted in: Blog Posts in Cystic Fibrosis It has been the longest blogging break in the history of mankind. OK well not quite that drastic, but it's been pretty lengthy, even by my standards. I am, however, still ... Read on »
Jess. I've started rewo ... by Emily T. Patient Expert Posted in: Blog Posts in Cystic Fibrosis Jess. I've started rewording this blog now for the umpteenth time so I'm just going to write; I keep worrying as to whether I am saying the right thing or not. I need ... Read on »
Just to reassure you, I haven' ... by Emily T. Patient Expert Posted in: Blog Posts in Cystic Fibrosis Just to reassure you, I haven't done any of the following a) died b) hit my head and suffered from amnesia c) given up blogging d) fallen down a hole somewhere (likely, ... Read on »
No apologies (I give up with t ... by Emily T. Patient Expert Posted in: Blog Posts in Cystic Fibrosis No apologies (I give up with those or I'll be apologising every time I post from now on!) Quick recap of what's been going on. Health-wise: everything is r ... Read on »