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The luckiest girl in the world. by Emily T. Patient Expert Posted in: Blog Posts in Cystic Fibrosis Almost a year has passed since I last blogged. As I'm sure you've all gathered now (and by "you all" I'm clearly assuming that anyone still checks in on this blog) I stop wr ... Read on »
Jamie Whyte’s views ( “Donatin ... by Emily T. Patient Expert Posted in: Blog Posts in Cystic Fibrosis Jamie Whyte’s views ( “Donating Organs could prove a costly decision”, Wednesday 15th February ) sadden me. Whilst his misconceptions about organ donation are shocking, they ... Read on »
My grandad was an extremel ... by Emily T. Patient Expert Posted in: Blog Posts in Cystic Fibrosis My grandad was an extremely generous, humble and loving man. We had to say goodbye to him yesterday, and though it was very sad, it really was a celebration of a wonderf ... Read on »
It's been a while... Oops. ... by Emily T. Patient Expert Posted in: Blog Posts in Cystic Fibrosis It's been a while... Oops. And apparently I only blog on family birthdays now, as today my tiniest dot of a sister Abby turned 21 and is now a big grown-up. Sort of. H ... Read on »
Today is the day my mum has be ... by Emily T. Patient Expert Posted in: Blog Posts in Cystic Fibrosis Today is the day my mum has been waiting and hoping for....I'm going to dedicate an entire blog to her. Actually the reason today is so exciting for my dear mother is t ... Read on »
Eep, a very neglected blog! In ... by Emily T. Patient Expert Posted in: Blog Posts in Cystic Fibrosis Eep, a very neglected blog! In fact I only realised how long it's been since I posted when I got an email from a follower, checking everything was OK! So apologies for that ... Read on »
Wheezy Penguin: Revisited. ... by Emily T. Patient Expert Posted in: Blog Posts in Cystic Fibrosis Wheezy Penguin: Revisited. It's always tricky undergoing procedures when you're feeling perfectly well and you know that they'll make you feel rather crap. Yesterday was ... Read on »
Four years ago today, my ... by Emily T. Patient Expert Posted in: Blog Posts in Cystic Fibrosis Four years ago today, my life was saved by someone I never had the priviledge of meeting. I didn't know them, I didn't know their family, they knew nothing about me ... Read on »
1st January 2011. I think ... by Emily T. Patient Expert Posted in: Blog Posts in Cystic Fibrosis 1st January 2011. I think I'll type that again. Just because I can. 1st January 2011. There's nothing quite like a new year to remind you just how bloody lucky you ... Read on »
Wheezy Penguin update time! ... by Emily T. Patient Expert Posted in: Blog Posts in Cystic Fibrosis Wheezy Penguin update time! Look at me being so restrained that I didn't immediately post I'M HOME AND MENDED this time after discharge. Instead, I've been very ca ... Read on »
Wheezy penguin does the hokey ... by Emily T. Patient Expert Posted in: Blog Posts in Cystic Fibrosis Wheezy penguin does the hokey cokey. In, out, in, out, you shake it all about... I managed a grand total of 4 days at home before being admitted. Again. To be fair to ... Read on »
Wheezy Penguin saga: the seque ... by Emily T. Patient Expert Posted in: Blog Posts in Cystic Fibrosis Wheezy Penguin saga: the sequel. I was a tad premature at celebrating my release from hospital, as that weekend, due to raised temps, a drop in lung function and a lot of ... Read on »
Chapter 748: The story of a wh ... by Emily T. Patient Expert Posted in: Blog Posts in Cystic Fibrosis Chapter 748: The story of a wheezy penguin. Well firstly, I had a lovely half term. A and I took the opportunity to get away and went to Derbyshire where we also visited ... Read on »
No apologies (I give up with t ... by Emily T. Patient Expert Posted in: Blog Posts in Cystic Fibrosis No apologies (I give up with those or I'll be apologising every time I post from now on!) Quick recap of what's been going on. Health-wise: everything is r ... Read on »
Shock horror, it's me, actuall ... by Emily T. Patient Expert Posted in: Blog Posts in Cystic Fibrosis Shock horror, it's me, actually posting on my blog. Do I have an excuse? Not really. Maybe this blog is heading into retirement, I'm not sure. Anyway a catch up on wh ... Read on »
The A - Z of me. Has it b ... by Emily T. Patient Expert Posted in: Blog Posts in Cystic Fibrosis The A - Z of me. Has it been done before or have I dreamt it up? Suspect I've read it on another blog but cannot find where....anyway, here's my very own personal A - Z ... Read on »
"Rich is excited about what ... by Emily T. Patient Expert Posted in: Blog Posts in Cystic Fibrosis "Rich is excited about what the future might hold" That's my mate Rich's facebook status at the moment. A couple of weeks ago, Rich was in the Brompton hospital wher ... Read on »
I am feeling increasingly frus ... by Emily T. Patient Expert Posted in: Blog Posts in Cystic Fibrosis I am feeling increasingly frustrated following comments and remarks surrounding this story here so I had to blog about it. The story is essentially an incredibly sad one; ... Read on »
“A man's worth is no greater t ... by Emily T. Patient Expert Posted in: Blog Posts in Cystic Fibrosis “A man's worth is no greater than the worth of his ambitions” - Marcus Aurelius “When ambition ends, happiness begins.” - Thomas Merton I'd start with my usual ... Read on »
Apologies for being profoundly ... by Emily T. Patient Expert Posted in: Blog Posts in Cystic Fibrosis Apologies for being profoundly rubbish on the blogging front. As per usual, whenever I go silent, it's a good sign; it means life is so busy that I've inevitably triple b ... Read on »