Then again, I don't know why I'm surprised no one told me about so much of the great information out there. I did find it, yes, which makes me lucky enough to be tech savvy to know how to search and inquisitive enough to go looking. But I shouldn't be the person doing the research to learn all about my own illness. I wish someone out there had told me such great information, right from the get go.
Am I bitter? Maybe. Has it fueled my passion? You better believe it.