Why is Down syndrome research such a low priority at NIH?
Posted Feb 08 2011 1:42am
Why is there so little funding for Down syndrome research at the National Institute of Health, when other diseases which affect far fewer people, given more money?
Despite a growing grassroots movement of parents who reacted to the 2007 statement of the ACOG that ALL pregnant mothers be tested for Trisomy 21, getting active legislatively with the Kennedy Brownback bill, and starting blogs and support groups online, inspiring Rep Cathy McMorris Rogers to form the Congressional Down Syndrome Caucus, there is still minimal funding to improve the lives of our children.
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